Northeast Regional Epilepsy Group Epilepsy Life Links
Quick Links Newsletter N° 6 | June, 2012

1- Featured Article: Epilepsy surgery - Enrique Feoli
2- Safety in epilepsy: Potential seizure detection device
3- Shining Epilepsy Star: Kelly Pretz: epilepsy advocate, author, spokesperson, and champion
4- How much do you know about epilepsy: How many people have epilepsy worldwide?
5- Featured Epilepsy specialty program: Tuberous Sclerosis Complex Program
6- Epilepsy Activities in 2012: Walks, epilepsy education, Purple Day
7- Our epilepsy specialists were recognized for their work
8- Stay Tuned for upcoming events in epilepsy in New York, New Jersey, Connecticut and internationally

 

Featured Article: Epilepsy surgery - Enrique Feoli

Dr. Enrique Feoli, epileptologist and Associate Director of the Northeast Regional Epilepsy Group International Branch, sat down to answer our questions about brain surgery as a form of treatment for epilepsy.  Dr. Feoli completed his training in Neurology and Epileptology at New York University Medical Center and New York Presbyterian Hospital-Cornell.  He is Board Certified in Neurology and Clinical Neurophysiology.  His research interests are primary generalized epilepsy, neurostimulation, and EEG in ICU monitoring. 

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Safety in epilepsy: Potential seizure detection device
Safety in epilepsy: Potential seizure detection device

SmartWatch is an “intelligent motion monitoring and alerting wristwatch.” With patented, miniaturized technology and sophisticated algorithms, the SmartWatch recognizes patterns of repetitive shaking and jerking movements and issues text and phone call alerts to family members’ cell phones within seconds. SmartWatch users can also summon help with a simple push of a button. In addition, SmartWatch automatically records these unusual movements and generates reports, which can be securely accessed for later review by your doctor.

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Shining Epilepsy Star: Kelly Pretz: epilepsy advocate, author, spokesperson, and champion
Shining Epilepsy Star: Kelly Pretz: epilepsy advocate, author, spokesperson, and champion

When Kelly Pretz was first diagnosed with epilepsy, she reacted by hiding her condition. However, realizing that this was not what she wanted, she has used this experience to help others and catapult her into a long list of inspired action in the epilepsy community. Some of the huge accomplishments she has achieved: publishing a book by 15 and speaking in Washington DC. as a representative of teens with epilepsy.  Kelly Pretz is a true shining epilepsy star.

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How much do you know about epilepsy: How many people have epilepsy worldwide?
How much do you know about epilepsy: How many people have epilepsy worldwide?

For the last three months we asked everyone who visited our website to take this survey.  The results are in now and it looks like many of the respondents knew the right answer but many others underestimated how many have epilepsy worldwide. If you read on, you'll learn more about the right answer.

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Featured Epilepsy specialty program: Tuberous Sclerosis Complex Program
Featured Epilepsy specialty program: Tuberous Sclerosis Complex Program

What is Tuberous Sclerosis?
Tuberous sclerosis complex (TSC) is a genetic disorder that causes tumors to form in many different organs, primarily in the brain, eyes, heart, kidney, skin and lungs. The tumors resulting from tuberous sclerosis complex are non-cancerous, but may still cause serious problems. The disease affects some people severely, while others are so mildly affected that it often goes undiagnosed. Nearly 1 million people worldwide are known to have TSC, with approximately 50,000 in the United States.

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Epilepsy Activities in 2012: Walks, epilepsy education, Purple Day
Epilepsy Activities in 2012: Walks, epilepsy education, Purple Day

Our Patients and the Northeast Regional Epilepsy Group have been REALLY busy the first half of 2012.  Our teams went on four epilepsy walks, held two epilepsy conferences for patients and loved ones, celbrated Purple Day with a vengeance in NY and NJ, and launched a new wellness in epilepsy initiative.

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Our epilepsy specialists were recognized for their work
Our epilepsy specialists were recognized for their work

Dr. Eric Segal and co-authors (Drs. Vendrame, Gregas, Loddenkemper and Kothare) had their article accepted for publication in the Journal Pediatric Neurology, Issue 46, pp: 359-362:
Effect of Treatment of obstructive sleep apnea on seizure outcome in children with epilepsy

Dr. Lorna Myers had her article accepted for publication in the LPANJ 2012 Vol 10, Issue 3 Bulletin, pp 11-16:
Ethics in the Neuropsychology of Spanish speakers

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Support Groups

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All our support groups will be back up and running for ten months starting September 2012

ADULTS WITH EPILEPSY & THEIR CAREGIVERS

2nd Tuesday of every month – 6:30 pm
Wallkill Medical Arts Building
390 Crystal Run Road – Suite 102
Middletown, NY

3rd Monday of every month - 6:00 pm
737 Castleton Ave
Staten Island, NY 10310
(two blocks from Richmond University Medical Center)

1st Thursday of every month - 6:30 pm
White Plains Hospital Medical Library
Davis Avenue & East Post Road
White Plains, NY 10601

3rd Thursday of every month - 6:30 pm
Hackensack University Medical Center
20 Prospect Avenue - Suite 800
Main Conference Room
Hackensack, NJ 07601

1st Tuesday of every month - 6:00 pm
Jersey City Medical Center
355 Grand Street
Conference Room #5
Jersey City, NJ 07302

1st Wednesday of every month -
6:00 pm

Manhattan
820 Second Avenue, Suite 6C
(between 44 and 43rd Streets)

GRUPOS DE APOYO EN ESPAÑOL

2do jueves de cada mes - 6:30 pm
Salon de Conferencia
20 Prospect Ave.
Suite 800
Hackensack, NJ 07601

2do miércoles de cada mes - 6:00 pm
Manhattan
820 Second Avenue, Suite 6C
(between 44 and 43rd Streets)

CONTACT INFORMATION
Lorna Myers, Ph.D.
212-661-7460, option 5
lmyers@epilepsygroup.com

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Stay Tuned for upcoming events in epilepsy in New York, New Jersey, Connecticut and internationally
Stay Tuned for upcoming events in epilepsy in New York, New Jersey, Connecticut and internationally

Attending epilepsy-themed events are a wonderful way to learn about epilepsy one on one with our doctors, meet others and get outdoors for some fresh air on the many epilepsy walks that take place during the year.

That is why it is so important to stay tuned about upcoming epilepsy education and events such as Walks and fundraisers.

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 iso epilepsy group www.epilepsygroup.com iso epilepsy life links www.epilepsylifelinks.com Follow Us on Facebook

Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of seventeen board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.

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bullets 20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
bullets 333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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