Northeast Regional Epilepsy Group Epilepsy Life Links
Quick Links Newsletter N° 7 | September, 2012

1- Feature Article: Autoimmune Epilepsy - the role of inflammation - Epileptologist, Dr. Brenda Wu
2- Safety in epilepsy: medication reminder alarm
3- Shining epilepsy star: Epilepsy surgery and Mark Jones
4- How many people have epilepsy? Survey results
5- Featured Program: The New Jersey and New York Epilepsy Diet Program at the Northeast Regional Epilepsy Group
6- Epilepsy Activities in summer of 2012: Epilepsy education, Purple Knitting club, Epilepsy Spoken Word for teens, and much more. Northeast Regional Epilepsy Group patients and staff have been busy!
7- Our epilepsy specialists in New York and New Jersey were recognized for their work:
8- Stay Tuned for upcoming events in epilepsy in New York, New Jersey, Connecticut

 

Feature Article: Autoimmune Epilepsy - the role of inflammation - Epileptologist, Dr. Brenda Wu

Dr. Brenda Wu, epileptologist, who has a particular interest in autoimmune epilepsy sat with us to answer questions about this new epilepsy topic. In this article, she explained what autoimmune epilepsy is, the history of inflammation and epilepsy, and what epilepsy doctors know about diagnosing and treating autoimmune epilepsy.
Dr. Brenda Wu completed her doctoral degree at Sun Yat-sen University in China, earned a Ph.D. in Pharmacology and Neuroscience at Albany Medical College, Clinical Neurophysiology Fellowship at University of Florida and completed her Epilepsy Fellowship at Yale New Haven Hospital.

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Safety in epilepsy: medication reminder alarm
Safety in epilepsy: medication reminder alarm

Remembering to take your anti-epileptic medications on time, every day and at different times of the day can be especially hard when you have memory problems.  Unfortunately, memory problems and epilepsy go hand in hand very often.  Forgetting a dose of your anti-epilepsy medication can be very serious. This is one of the main reasons for break-through epileptic seizures.   And one seizure is one seizure too many because of the risks each seizure carries. In this issue we are featuring a new medical technology product that has been designed to help you remember to take your medications on time. 

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Shining epilepsy star: Epilepsy surgery and Mark Jones
Shining epilepsy star: Epilepsy surgery and Mark Jones

Mark Jones is this issue’s shining epilepsy star for all the help he gives to others with epilepsy by regularly sharing his experience of living with epilepsy since he was a baby and how life changed for him after having epilepsy surgery. He is tireless and always willing to speak to others about his experience with epilepsy and epilepsy surgery.

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How many people have epilepsy? Survey results
How many people have epilepsy? Survey results

The Epilepsy Survey results are in showing how much our voters really know about epilepsy:

More people have epilepsy than Cerebral Palsy, Multiple Sclerosis, and Parkinson's Disease combined. True or false?


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Featured Program: The New Jersey and New York Epilepsy Diet Program at the Northeast Regional Epilepsy Group
Featured Program: The New Jersey and New York Epilepsy Diet Program at the Northeast Regional Epilepsy Group

This brief article describes the Northeast Regional Epilepsy Group’s new Epilepsy Diet Program now available to patients with epilepsy in New Jersey and New York.

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Epilepsy Activities in summer of 2012: Epilepsy education, Purple Knitting club, Epilepsy Spoken Word for teens, and much more. Northeast Regional Epilepsy Group patients and staff have been busy!
Epilepsy Activities in summer of 2012: Epilepsy education, Purple Knitting club, Epilepsy Spoken Word for teens, and much more. Northeast Regional Epilepsy Group patients and staff have been busy!

Our Patients and the Northeast Regional Epilepsy Group were REALLY busy during the summer of 2012. Our patients have been knitting purple items preparing for November and epilepsy awareness, learning how to use computers, peach picking, and sharing their creative writings.  Our staff was out speaking about epilepsy to high school students, on Sirius Radio, and overseas in Mexico and Colombia.

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Our epilepsy specialists in New York and New Jersey were recognized for their work:
Our epilepsy specialists in New York and New Jersey were recognized for their work:

Dr. Olgica Laban Grant was awarded 2012 “Top Doctor” Recognition from Westchester Magazine.

Dr. Eric Segal attended the Dravet.org Annual conference where he was granted an interview with Dr. Dravet and his patient’s mother. 

Drs. Lorna Myers, Olga Laban-Grant, Marcelo Lancman, and Martin Lancman and Barbara Matzner
had their article: PSYCHOGENIC NON-EPILEPTIC SEIZURES: PREDISPOSING FACTORS TO DIMINISHED QUALITY OF LIFE accepted for publication to Epilepsy & Behavior Journal (in press).

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Support Groups

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All our support groups are back up and running for the next 10 months!

ADULTS WITH EPILEPSY & THEIR CAREGIVERS

2nd Tuesday of every month – 6:30 pm
Wallkill Medical Arts Building
390 Crystal Run Road – Suite 102
Middletown, NY

3rd Monday of every month - 6:00 pm
737 Castleton Ave
Staten Island, NY 10310
(two blocks from Richmond University Medical Center)

1st Thursday of every month - 6:30 pm
White Plains Hospital Medical Library
Davis Avenue & East Post Road
White Plains, NY 10601

3rd Thursday of every month - 6:30 pm
Hackensack University Medical Center
20 Prospect Avenue - Suite 800
Main Conference Room
Hackensack, NJ 07601

1st Tuesday of every month - 6:00 pm
Jersey City Medical Center
355 Grand Street
Conference Room #5
Jersey City, NJ 07302

1st Wednesday of every month -
6:00 pm

Manhattan
820 Second Avenue, Suite 6C
(between 44 and 43rd Streets)

GRUPOS DE APOYO EN ESPAÑOL

2do jueves de cada mes - 6:30 pm
Salon de Conferencia
20 Prospect Ave.
Suite 800
Hackensack, NJ 07601

1er jueves de cada mes - 6:00 pm
Manhattan
820 Second Avenue, Suite 6C
(between 44 and 43rd Streets)

CONTACT INFORMATION
Lorna Myers, Ph.D.
212-661-7460, option 5
lmyers@epilepsygroup.com

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Stay Tuned for upcoming events in epilepsy in New York, New Jersey, Connecticut
Stay Tuned for upcoming events in epilepsy in New York, New Jersey, Connecticut

Epilepsy Conferences for patients and loved ones will be held on the following dates and places

As part of the Epilepsy: Knowledge is Power campaign that the Northeast Regional Epilepsy Group is leading all year long, a total of 11 free epilepsy conferences for patients and loved ones will be held in New York, New Jersey and Connecticut on September 22 (two conferences), September 29 and October 4, 17, 20 and November 3 (3 conferences), 10, 16.

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 iso epilepsy group www.epilepsygroup.com iso epilepsy life links www.epilepsylifelinks.com Follow Us on Facebook

Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of seventeen board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.

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bullets 20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
bullets 333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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