Northeast Regional Epilepsy Group Epilepsy Life Links
Quick Links Newsletter N° 15 | September, 2014

1- Anti-epileptic drugs: Generic versus brand name Feature Article
2- Epilepsy Star: Mary Holtz
3- Epilepsy Survey Results: What is the national month of epilepsy awareness in the US?
4- Safety in Epilepsy: 4Paws for Ability
5- Our epilepsy community has been busy with Walks and epilepsy webinars
6- Project UPLIFT for NEREG epilepsy patients: New Program provides skills to prevent depression
7- Our Epilepsy and Seizure Experts have been busy
8- 2014 scholarships for adults with epilepsy and seizure disorders
9- Epilepsy on the move: Stay tuned

 

Anti-epileptic drugs: Generic versus brand name Feature Article

Drugs that are used to treat epilepsy are called anti-epileptic drugs (AEDs for short). Epilepsy is a disorder that has been mentioned in ancient texts; hence, it is no surprise that the ancient Greeks and medieval Europeans used a variety of plants and herbs to cure epilepsy. In the 1800s, potassium bromide was found to be effective in seizures, and this marked the advent of modern AEDs. Today, there are a number of AEDs in the market. AEDs treat or curb seizures, they do not cure epilepsy. For this reason, some researchers say that perhaps a more accurate term would be ‘anti-seizure drug’ instead of ‘anti-epileptic drug’.  Different AEDs are used for different epilepsy syndromes. The good news is that for two-third of people with epilepsy, their seizures will be effectively stopped with one AED. For the rest of the patient population, this is not the case, and a combination of AEDs may be necessary. 

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Epilepsy Star: Mary Holtz
Epilepsy Star: Mary Holtz

This issue we are featuring an incredible epilepsy star who has been working to raise epilepsy and seizure disorders awareness for years.  She has singlehandedly put together massive teams of walkers for local and the national epilepsy walk and fund raised like nobody’s business. 

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Epilepsy Survey Results: What is the national month of epilepsy awareness in the US?
Epilepsy Survey Results: What is the national month of epilepsy awareness in the US?

Did you know that there is a NATIONAL EPILEPSY MONTH in the USA?  On that month, the epilepsy community launches countless events throughout the country.  Individuals dress in purple, education about epilepsy and seizures takes place almost on a daily basis, and much more.  The National Epilepsy Month in the US is November.  Now that you know, what are you going to do to raise epilepsy awareness?

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Safety in Epilepsy: 4Paws for Ability
Safety in Epilepsy: 4Paws for Ability

For this issue of the Northeast Regional Epilepsy Center newsletter, we would like to feature an organization called 4Paws for Ability. Of course, we were interested in how 4Paws for Ability can help individuals with epilepsy, Sloka Iyengar, PhD talked to Ms. Karen Shirk – the founder of this wonderful institution.

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Our epilepsy community has been busy with Walks and epilepsy webinars
Our epilepsy community has been busy with Walks and epilepsy webinars

Our patients and doctors have been working steadily to educate the public on epilepsy and seizure topics, raise epilepsy awareness and support our local foundations through fundraising.  We are especially proud of NEREG team captain, Shelby Santucci, who won  the Best Individual and Corporate Fundraising awards in Dutchess County, NY!

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Project UPLIFT for NEREG epilepsy patients: New Program provides skills to prevent depression
Project UPLIFT for NEREG epilepsy patients: New Program provides skills to prevent depression

Starting this year, Urmi Vaidya-Mathur, LCSW of the Northeast Regional Epilepsy Group has started to offer distance based skill building groups to patients with epilepsy through Project UPLIFT. She completed training in this technique over several months. 

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Our Epilepsy and Seizure Experts have been busy
Our Epilepsy and Seizure Experts have been busy

Our epilepsy and seizure experts have been working hard educating health professionals about epilepsy and seizure disorders, advancing projects as well as becoming better trained in subspecialties. 

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2014 scholarships for adults with epilepsy and seizure disorders
2014 scholarships for adults with epilepsy and seizure disorders

The Epilepsy Free granted eight continuing education scholarships for adults living with Epilepsy and other Seizure Disorders (Psychogenic non-epileptic seizures) this year!

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Support Groups

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Our support groups are back up and running through September 2014 to June 2015!

ADULTS WITH EPILEPSY & THEIR CAREGIVERS

1st Thursday of every month - 6:30 pm
White Plains Hospital Centennial Room
Davis Avenue & East Post Road
White Plains, NY 10601

3rd Wednesday of every month - 6:30 pm
Hackensack University Medical Center
20 Prospect Avenue - Suite 800
Main Conference Room
Hackensack, NJ 07601

1st Tuesday of every month - 6:00 pm
Jersey City Medical Center
355 Grand Street
Conference Room #5
Jersey City, NJ 07302

PSYCHOGENIC NON-EPILEPTIC SEIZURES (PNES) 

Third Wednesday of the month - 5:30 pm
20 Prospect Ave.
Suite 800
Hackensack, NJ 07601
(the group closes for the summer in July and August and starts up again in September)

CONTACT INFORMATION

Urmi Vaidya
201-343-6676
uvmlcsw@gmail.com

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Epilepsy on the move: Stay tuned
Epilepsy on the move: Stay tuned

Epilepsy education and awareness events don’t take a break in the fall and winter.  There are a number of activities being offered by NEREG for all kinds of personal tastes and necessities. We will be offering our 1) annual New York City epilepsy conference that is offered simultaneously in Spanish and English, 2) three webinars given by our epileptologists, 3) the Purple Pumpkin Project Event in Hackensack, and 4) our team is walking and running in Jersey City to raise funds for the Epilepsy Foundation of NJ.

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 iso epilepsy group www.epilepsygroup.com iso epilepsy life links www.epilepsylifelinks.com Follow Us on Facebook

Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of seventeen board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.

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bullets 20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
bullets 333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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