Northeast Regional Epilepsy Group Epilepsy Life Links
Quick Links Newsletter N° 19 | September, 2015

1- The Vagus Nerve Stimulator and how it can be useful for treating epilepsy in children: Feature Article
2- Seizure Star - Lee Paolella (leeleesagg)
3- Epilepsy Survey: What do those living with epilepsy need most urgently
4- Safety Article: Guardian Helmets
5- Our epilepsy staff and community have been busy with walks and educational webinars in 2015
6- Epilepsy on the move: Stay tuned

 

The Vagus Nerve Stimulator and how it can be useful for treating epilepsy in children: Feature Article

For this issue of the Northeast Regional Epilepsy Group newsletter, Sloka Iyengar, PhD, clinical researcher at NEREG sat down with Dr. Lorraine Lazar to talk about how the vagus nerve stimulator (VNS), a thin round pacemaker-like device, can be useful for treating children with epilepsy. 

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Seizure Star - Lee Paolella (leeleesagg)
Seizure Star - Lee Paolella (leeleesagg)

For NEREG's September 2015 newsletter, Lee Paolella, a patient living with psychogenic non-epileptic seizures (PNES), a seizure condition often associated with PTSD and triggered by psychological stress, sat down with us to tell us about her impressive advocacy activities.  Until recently, PNES was misunderstood and ignored by many health professionals and the general public, but now with a growing and empowered community, this is starting to change.  Lee has been a big part of this change.

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Epilepsy Survey: What do those living with epilepsy need most urgently
Epilepsy Survey: What do those living with epilepsy need most urgently

This quarter we asked visitors to our website page (www.epilepsygroup.com) to tell us what they think is most urgently needed in epilepsy: is it research on treatments, is it a strong grassroots community, or what?  The answers are now in.  Check to see if you agree.

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Safety Article: Guardian Helmets
Safety Article: Guardian Helmets

For the Safety Article in this issue of the Northeast Regional Epilepsy Group newsletter, Sloka Iyengar, PhD -- clinical researcher at NEREG looked up Guardian Helmets -- a firm that designs helmets especially for people with disorders like epilepsy and autism.

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Our epilepsy staff and community have been busy with walks and educational webinars in 2015
Our epilepsy staff and community have been busy with walks and educational webinars in 2015

Our patients, doctors and staff have been working steadily to raise epilepsy awareness and support our local foundations through fundraising.  Team NEREG traveled to the Hudson Valley to raise funds and awareness for epilepsy and seizures and our doctors have been providing education through webinars on a monthly basis.  

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Support Groups

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Our support groups are back up and running through September 2015 to June 2016!

ADULTS WITH EPILEPSY & THEIR CAREGIVERS

1st Thursday of every month - 6:30 pm
White Plains Hospital Centennial Room
Davis Avenue & East Post Road
White Plains, NY 10601

 

VIRTUAL SUPPORT GROUPS

Psychogenic non-epileptic seizures (PNES) support group
First Thursday of the month until June: From 1:00pm-2:00pm

The group is for patients diagnosed with PNES who have completed treatment or who are advanced in their current treatment.  The group meets to go over current problems that may have arisen for group members associated to PNES, for general support and comradery, and to continue to be part of the PNES community.

Third Wednesday of the month From January to June: From 6:00pm-7:00pm
The NEREG Virtual Support groups provide a forum that facilitates and promotes the sharing of common interests, information, and experiences within the epilepsy community. These online groups allow you to participate in support activities when you are unable to attend a local support meeting in person; and are managed by qualified facilitators knowledgeable on Epilepsy-related topics. During these sessions, you have the opportunity to speak with other participants, seek advice, make friends, discover new ideas, share your experiences – good and bad, and help support others managing Epilepsy. 

Joining a group is easy!
Benefits:
• All 60-minute sessions are held through GoToMeeting® 
• Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.)
• All groups are led by an experienced facilitator who is knowledgeable about Epilepsy.
• Confidential.
• Participation in this facilitated discussion is expected and encouraged. You are not on camera, so come in your PJs.
• FREE 


CONTACT INFORMATION

Urmi Vaidya
201-343-6676
uvmlcsw@gmail.com

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Epilepsy on the move: Stay tuned
Epilepsy on the move: Stay tuned

Epilepsy education and awareness events don't take a break in the fall. There are a number of activities being offered by NEREG for all kinds of personal tastes and necessities. We will be offering our 1) annual Northeast Regional Epilepsy Group conference on epilepsy and psychogenic non-epileptic seizures in October, 2) webinars galore given by our epileptologists and psychologists 3) Drs. Marcelo Lancman and Lorna Myers will be traveling to Argentina to give lectures on epilepsy and PNES and much more.

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 iso epilepsy group www.epilepsygroup.com iso epilepsy life links www.epilepsylifelinks.com Follow Us on Facebook

Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of seventeen board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.

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bullets 20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
bullets 333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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