Northeast Regional Epilepsy Group Epilepsy Life Links
Quick Links Newsletter N° 20 | December, 2015

1- Status Epilepticus-what we all need to know: Feature Article
2- Epilepsy Star: Lance Fogan, M.D.
3- Epilepsy Survey: Tell us about yourself so we know who came to visit our page.
4- Safety and Epilepsy: Photosensitive epilepsy and the flashing lights during the holidays
5- Our epilepsy community has been busy with Walks and Education the second half of 2015
6- Epilepsy on the move: Stay tuned

 

Status Epilepticus-what we all need to know: Feature Article

For this issue of the Northeast Regional Epilepsy Group newsletter Julie Tsao, M.D., epileptologist explained the important topic of status epilepticus (SE) which is defined as a prolonged seizure or repeated seizures without full recovery in between seizures and represents an emergency.

We thank her for providing us with a clear explanation of what SE is, what to do about it and what research is coming down the pipeline.

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Epilepsy Star: Lance Fogan, M.D.
Epilepsy Star: Lance Fogan, M.D.

For this issue we have the fortune of interviewing doctor and author, Dr. Lance Fogan.  As a neurologist, he worked for years treating patients diagnosed with epilepsy and now retired, he continues to advocate and educate the public on epilepsy through his wonderful book "Dings" as well as giving lectures, participating in epilepsy events, and through an active on-line presence.  Because of his tireless efforts in epilepsy he has been chosen to be our December epilepsy star!

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Epilepsy Survey: Tell us about yourself so we know who came to visit our page.
Epilepsy Survey: Tell us about yourself so we know who came to visit our page.

Over the last few months, we updated out homepage survey asking visitors to tell us about themselves. We were interested in knowing who is swinging by our site. 

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Safety and Epilepsy: Photosensitive epilepsy and the flashing lights during the holidays
Safety and Epilepsy: Photosensitive epilepsy and the flashing lights during the holidays

Most of us have heard that flashing lights can be a trigger to epileptic seizures.  Probably the most famous case of seizures triggered by flashing lights happened in 1997 when nearly 700 children ended up in the ER in Japan after watching a Pokémon cartoon. 

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Our epilepsy community has been busy with Walks and Education the second half of 2015
Our epilepsy community has been busy with Walks and Education the second half of 2015

Our patients, doctors and staff have been working steadily to raise epilepsy awareness and support our local foundations through fundraising.  

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Support Groups

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Our support groups are back up and running through September 2015 to June 2016!

ADULTS WITH EPILEPSY & THEIR CAREGIVERS

1st Thursday of every month - 6:30 pm
White Plains Hospital Centennial Room
Davis Avenue & East Post Road
White Plains, NY 10601

 

VIRTUAL SUPPORT GROUPS

Psychogenic non-epileptic seizures (PNES) support group
First Thursday of the month until June: From 1:00pm-2:00pm

The group is for patients diagnosed with PNES who have completed treatment or who are advanced in their current treatment.  The group meets to go over current problems that may have arisen for group members associated to PNES, for general support and comradery, and to continue to be part of the PNES community.

Third Wednesday of the month From January to June: From 6:00pm-7:00pm
The NEREG Virtual Support groups provide a forum that facilitates and promotes the sharing of common interests, information, and experiences within the epilepsy community. These online groups allow you to participate in support activities when you are unable to attend a local support meeting in person; and are managed by qualified facilitators knowledgeable on Epilepsy-related topics. During these sessions, you have the opportunity to speak with other participants, seek advice, make friends, discover new ideas, share your experiences – good and bad, and help support others managing Epilepsy. 

Joining a group is easy!
Benefits:
• All 60-minute sessions are held through GoToMeeting® 
• Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.)
• All groups are led by an experienced facilitator who is knowledgeable about Epilepsy.
• Confidential.
• Participation in this facilitated discussion is expected and encouraged. You are not on camera, so come in your PJs.
• FREE 


CONTACT INFORMATION

Urmi Vaidya
201-343-6676
uvmlcsw@gmail.com

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Epilepsy on the move: Stay tuned
Epilepsy on the move: Stay tuned

Epilepsy education and awareness events don't take a break in the winter. There are a number of activities being offered by NEREG for all kinds of personal tastes and necessities. You are invited to join team NEREG in April when we all travel down to Washington, DC and march for epilepsy and seizures (including PNES) at the 10th National Epilepsy Walk. There is also one last webinar scheduled for December. This will mark the end of our 2015 webinar series. Stay tuned for our 2016 webinar series.  

 

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 iso epilepsy group www.epilepsygroup.com iso epilepsy life links www.epilepsylifelinks.com Follow Us on Facebook

Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of seventeen board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.

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bullets 20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
bullets 333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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