Northeast Regional Epilepsy Group Epilepsy Life Links
Quick Links Newsletter N° 21 | March, 2016

1- New Seizure Detection Device (AspireSR®) is helping those with epilepsy - Feature Article
2- Epilepsy star: EFNENY Jeanine Garab
3- Riding 40 miles for EPILEPSY FREE and to raise awareness of Epilepsy and Seizure Disorders!
4- Safety in Epilepsy - the SEIZURE PREPAREDNESS PLAN
5- Our epilepsy community of patients, family, friends and doctors has been busy
6- Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in 2016

 

New Seizure Detection Device (AspireSR®) is helping those with epilepsy - Feature Article

For this issue, we are featuring a new seizure-detection device that was recently approved by the FDA and that is showing good potential to help persons living with non-responding epilepsy who might not have been considered candidates for epilepsy surgery.

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Epilepsy star: EFNENY Jeanine Garab
Epilepsy star: EFNENY Jeanine Garab

Jeannine S. Garab is the Executive Director of the Epilepsy Foundation of Northeastern NY, an energetic foundation that spends the whole year planning activities and supporting its members through a multitude of services. We sat down with her to hear about how she came to work in epilepsy and what her plans are for the future. 

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Riding 40 miles for EPILEPSY FREE and to raise awareness of Epilepsy and Seizure Disorders!
Riding 40  miles for EPILEPSY FREE and to raise awareness of Epilepsy and Seizure Disorders!

Four members (Lorna, Renata, Jill, and Mari) of Team EPILEPSY FREE will be riding in the 5-borough Bike-a-Thon to raise awareness on epilepsy and seizure disorders and funds for EPILEPSY FREE. Every year EPILEPSY FREE donates summer camp and continuing education scholarships for persons living with epilepsy and psychogenic seizures. 

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Safety in Epilepsy - the SEIZURE PREPAREDNESS PLAN
Safety in Epilepsy - the SEIZURE PREPAREDNESS PLAN

Even though we want to be optimistic in life, when someone is living with epilepsy, it is always important to be prepared for the possibility of future seizures and the best way to be prepared is by having a Seizure Preparedness Plan.  This plan is for relatives, friends, and caregivers or anyone who might be with the person when a seizure occurs.  Patients are encouraged to come up with a personalized plan and to share with anyone they think might benefit from knowing. 

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Our epilepsy community of patients, family, friends and doctors has been busy
Our epilepsy community of patients, family, friends and doctors has been busy

Our epilepsy community has been busy celebrating International Epilepsy Day, publishing articles in peer-reviewed journals, and offering wellness programs the first quarter of 2016

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Support Groups

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Our support groups are back up and running through September 2015 to June 2016!

ADULTS WITH EPILEPSY & THEIR CAREGIVERS

1st Thursday of every month - 6:30 pm
White Plains Hospital Centennial Room
Davis Avenue & East Post Road
White Plains, NY 10601

 

VIRTUAL SUPPORT GROUPS

Psychogenic non-epileptic seizures (PNES) support group
First Thursday of the month until June: From 1:00pm-2:00pm

The group is for patients diagnosed with PNES who have completed treatment or who are advanced in their current treatment.  The group meets to go over current problems that may have arisen for group members associated to PNES, for general support and comradery, and to continue to be part of the PNES community.


Joining a group is easy!
Benefits:
• All 60-minute sessions are held through GoToMeeting® 
• Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.)
• All groups are led by an experienced facilitator who is knowledgeable about Epilepsy.
• Confidential.
• Participation in this facilitated discussion is expected and encouraged. You are not on camera, so come in your PJs.
• FREE 


CONTACT INFORMATION

Lorna Myers
lmyers@epilepsygroup.com

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Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in 2016
Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in 2016

Stay tuned because there are a ton of epilepsy and seizure disorder events and activities coming up this year including walks, runs, conferences, and workshops. 

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 iso epilepsy group www.epilepsygroup.com iso epilepsy life links www.epilepsylifelinks.com Follow Us on Facebook

Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of seventeen board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.

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bullets 20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
bullets 333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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