Northeast Regional Epilepsy Group Epilepsy Life Links
Quick Links Newsletter N° 27 | September, 2017

1- Feature Article: Supporting children with seizures in the school, Shannon Brophy, RN, MSN, APN-BC
2- Epilepsy Free Not-for-profit: the little foundation that could
3- Seizure Star: Katherine Berger
4- Epilepsy Survey results: Test your knowledge by responding to the following question: Approximately how many American have epilepsy?
5- Our epilepsy community of patients, family, friends and doctors has been busy
6- Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in 2017

 

Feature Article: Supporting children with seizures in the school, Shannon Brophy, RN, MSN, APN-BC

For this issue of the Northeast Regional Epilepsy Group newsletter, we feature an article based on a conversation we had with Shannon Brophy, RN, MSN, APN-BC, who many of you may have met in our New York and New Jersey offices and hospitals. She sat down to discuss a very important topic: how to best support a student with seizures in a school setting.  

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Epilepsy Free Not-for-profit: the little foundation that could
Epilepsy Free Not-for-profit: the little foundation that could

The purpose of Epilepsy Free is to support people with epilepsy and seizure disorders (including psychogenic non-epileptic seizures) achieve a life with FREEDOM FROM the limitations that EPILEPSY and SEIZURES might bring.  

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Seizure Star: Katherine Berger
Seizure Star: Katherine Berger

For NEREG's September 2017 newsletter, Katherine Berger, someone living with psychogenic non-epileptic seizures (PNES), a seizure condition often associated with PTSD and triggered by psychological stress, and a very accomplished author, sat down with us to tell us about her advocacy activities.  Even today, PNES is often misunderstood and ignored by many health professionals and the general public, but with a growing and empowered community, this is starting to change.  Kate has been a big part of this change by authoring a wonderful book called "View from the Floor".

 

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Epilepsy Survey results: Test your knowledge by responding to the following question: Approximately how many American have epilepsy?
Epilepsy Survey results: Test your knowledge by responding to the following question: Approximately how many American have epilepsy?

Over the past few months, we asked our webpage visitors to test their knowledge about epilepsy by answering the following question: Approximately how many American have epilepsy?  Respondents could choose from the following answers: 3 million, 10 million, half a million, or one million.  Do you know how many Americans have epilepsy?  Most of our visitors got it right.  Read the survey results by clicking on the link.  

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Our epilepsy community of patients, family, friends and doctors has been busy
Our epilepsy community of patients, family, friends and doctors has been busy

Patients, family members, friends, doctors, office managers, secretaries and nurses have all been extra-busy these last few months raising epilepsy awareness through 1) a Jersey Shore bike ride, 2) Walk into the Light Epilepsy event in New York City, 3) community booths in two New Jersey locations, and 4) a very timely webinar on managing seizures in the school given by nurse practitioner, Shannon Brophy. Last but certainly not least, NEREG doctors have published a number of scientific articles in the last few months.  These publications have come out in peer-reviewed journals.  Below you can read all about the activities NEREG and their patients have been a part of during this year!

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Support Groups

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Our support groups are back up and running through September 2016 to June 2017!

VIRTUAL SUPPORT GROUPS

Psychogenic non-epileptic seizures (PNES) support group
Third Thursday of the month until June: From 12-1PM

The group is for patients at our NEREG PNES program diagnosed with PNES who have completed treatment or who are advanced in their current treatment. Unfortunately, the group is not open to anyone who has not gone through our treatment program because the demand would be too great for our conference call. The group meets to touch base, to go over current problems that may have arisen for group members associated to PNES, for general support and comradery, and to continue to be part of the PNES community.


Joining a group is easy!
Benefits:
• All 60-minute sessions are held through GoToMeeting® 
• Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.)
• All groups are led by a facilitator who is knowledgeable about psychogenic non-epileptic seizures. 
• Confidential.
• Participation in this facilitated discussion is expected and encouraged. You are not on camera, so come in your PJs.
• FREE 

CONTACT INFORMATION

If you are a NEREG patient, have epilepsy and would be interested in a similar group, please contact Lmyers@epilepsygroup.com. In the past, we tried to establish an on-line group like this for our patients with epilepsy but there was limited attendance-but who is to say that we can't try again and with better results?

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Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in 2017
Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in 2017

Stay tuned because there are a lot of epilepsy and seizure disorder events and activities coming up in the second half of 2017 including the Northeast Regional Epilepsy Group annual conference that is being held in Morristown, NJ this year in October and a flurry of activities our doctors and nurses are involved in during the December American Epilepsy Society Meeting held in Washington, DC. This meeting is the most important professional meeting on epilepsy in all of the US and quite possibly, the world. 

 

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Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of seventeen board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.

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