Northeast Regional Epilepsy Group Epilepsy Life Links
Quick Links Newsletter N° 28 | December, 2017

1- Epilepsy Research: Novel treatments are being investigated at the Northeast Regional Epilepsy Group offices - Feature article
2- Seizure star: Kim Potts
3- Epilepsy Survey results: Test your knowledge by responding to the following question: Have you ever participated in an epilepsy and seizure disorder walk, run or ride?
4- Our epilepsy community of patients, family, friends and doctors has been busy
5- Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in 2018

 

Epilepsy Research: Novel treatments are being investigated at the Northeast Regional Epilepsy Group offices - Feature article

The Northeast Regional Epilepsy Group (NEREG) is currently conducting research on a new drug called TAK935 in their Hackensack, New Jersey offices. The Principal Investigator (PI) of the study at NEREG is Dr. Marcelo Lancman who is also the Medical Director of the program.

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Seizure star: Kim Potts
Seizure star: Kim Potts

Our quarterly seizure stars are adults or children who have gone above and beyond to raise awareness about epilepsy and seizures, to raise funds for resources, supports and future research, and who have been all-round stars in promoting knowledge in their community.  This issue's Seizure Star is Kim Potts because of the years she has spent working in the field of epilepsy as a full time employee and as a weekend warrior.  

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Epilepsy Survey results: Test your knowledge by responding to the following question: Have you ever participated in an epilepsy and seizure disorder walk, run or ride?
Epilepsy Survey results: Test your knowledge by responding to the following question: Have you ever participated in an epilepsy and seizure disorder walk, run or ride?

Participating in a community activity is not for everyone but a lot of people do choose to participate and enjoy the sense of being part of a large group instead of all alone.  During the past few months, we asked our visitors, how many had participated in epilepsy activities.

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Our epilepsy community of patients, family, friends and doctors has been busy
Our epilepsy community of patients, family, friends and doctors has been busy

Patients, family members, friends, doctors, office managers, secretaries and nurses have all been extra-busy these last few months raising epilepsy awareness through:
1) Our annual epilepsy and seizure disorders conference held in Morristown Hospital,
2) The Jersey City Glow Walk and Run to support the Epilepsy Foundation of New Jersey, and
3) November Epilepsy Awareness Month in our offices in Manhattan, Morristown and Hackensack.
Last but certainly not least, NEREG doctors have published a number of scientific articles in the last few months. 

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Support Groups

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Our support groups are back up and running through September 2017 to June 2018!

VIRTUAL SUPPORT GROUPS

Psychogenic non-epileptic seizures (PNES) support group
Third Thursday of the month until June: From 12-1PM

The group is for patients at our NEREG PNES program diagnosed with PNES who have completed treatment or who are advanced in their current treatment. Unfortunately, the group is not open to anyone who has not gone through our treatment program because the demand would be too great for our conference call. The group meets to touch base, to go over current problems that may have arisen for group members associated to PNES, for general support and comradery, and to continue to be part of the PNES community.

The NEREG Epilepsy Virtual Support group provides a forum that facilitates and promotes the sharing of common interests, information, and experiences within the epilepsy community. This is an online group which allows you to participate in support activities when you are unable to attend a local support meeting in person; and are managed by a qualified facilitators knowledgeable on Epilepsy-related topics. During these sessions, you have the opportunity to speak with other participants, seek advice, make friends, discover new ideas, share your experiences -- good and bad, and help support others managing epilepsy. Please email rzeng@epilepsygroup.com in order to sign up!


Joining a group is easy!
Benefits:
• All 60-minute sessions are held through GoToMeeting® 
• Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.)
• All groups are led by a facilitator who is knowledgeable about psychogenic non-epileptic seizures. 
• Confidential.
• Participation in this facilitated discussion is expected and encouraged. You are not on camera, so come in your PJs.
• FREE 

CONTACT INFORMATION

If you are a NEREG patient, have epilepsy and would be interested in a similar group, please contact Lmyers@epilepsygroup.com. In the past, we tried to establish an on-line group like this for our patients with epilepsy but there was limited attendance-but who is to say that we can't try again and with better results?

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Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in 2018
Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in 2018

2018 is bringing a lot of very cool activities including International Epilepsy Day, the National Epilepsy Walk, the awesome Glow Walk Run for the Epilepsy Foundation of NJ and of course, our annual Northeast Regional Epilepsy Group meeting.  Make sure to read all about them and to mark your calendar so as to not forget.

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Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of seventeen board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.

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bullets 20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
bullets 333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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