Northeast Regional Epilepsy Group Epilepsy Life Links
Quick Links Newsletter N° 29 | March, 2018

1- Post traumatic epilepsy discussed by Dr. Enrique Feoli-Feature article
2- Seizure star: Assemblywoman, Valerie Vainieri Huttle
3- Epilepsy Survey results: Test your knowledge by responding to the following question: When does the risk for post-traumatic epilepsy increase?
4- Safety for epilepsy: The Help Belt
5- Our epilepsy and seizures community of patients, family, friends and doctors has been busy
6- Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in 2018

 

Post traumatic epilepsy discussed by Dr. Enrique Feoli-Feature article

Head injury is a known cause of epilepsy. A number of factors can lower the seizure threshold and result in post-traumatic seizures (PTS).

In this issue, we sat down with Dr. Enrique Feoli, epileptologist, Associate Director of Northeast Regional Epilepsy Group International Branch and Co-director of the Northeast Regional Epilepsy Group in Hackensack, New Jersey.  Dr. Feoli earned his medical degree at National University of Cordoba Medical School in Argentina.  He then came to the USA and went on to complete his training in neurology and epilepsy in the following medical centers: Internship at the Bronx Lebanon Medical Center, Residency at New York University Medical Center and Fellowships at New York University Medical Center and New York Presbyterian Hospital, Cornell Campus.  In recent years, he has developed a particular interest in post-traumatic epilepsy (PTE) and was part of the American Epilepsy Society's Special Interest Group in PTE while it was meeting

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Seizure star: Assemblywoman, Valerie Vainieri Huttle
Seizure star: Assemblywoman, Valerie Vainieri Huttle

Our quarterly seizure stars are adults or children who have gone above and beyond to raise awareness about epilepsy and seizures, to raise funds for resources and future research, and who have been all-round stars in promoting knowledge in their community.  This issue's Seizure Star is Assemblywoman Valerie Huttle because of the incredible work she is doing in advancing the lives of those living with epilepsy in New Jersey.  Read all about the bills she has introduced and how these could translate into very meaningful changes for you. 

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Epilepsy Survey results: Test your knowledge by responding to the following question: When does the risk for post-traumatic epilepsy increase?
Epilepsy Survey results: Test your knowledge by responding to the following question:  When does the risk for post-traumatic epilepsy increase?

During the past few months, we asked visitors who came by our website (epilepsygroup.com) to test their knowledge by responding to the following question:  When does the risk for post-traumatic epilepsy increase? The response choices included: A) penetrating head injury, B) intracranial hematoma, C) skull fracture, D) all of the above.  We received 21 votes with the majority picking response d).  This shows us that our visitors know their stuff!  All three options listed can increase the risk of developing post traumatic epilepsy.  Read more about PTE in our feature article above.  

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Safety for epilepsy: The Help Belt
Safety for epilepsy: The Help Belt

This item is designed to be used on car seatbelts and can alert first responders that the passenger suffers from epilepsy (even if everyone in the vehicle is unconscious). These belts are the brainchild and the unique creation of Susan from "Help Belts" and may prove useful to our readers.

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Our epilepsy and seizures community of patients, family, friends and doctors has been busy
Our epilepsy and seizures community of patients, family, friends and doctors has been busy

Patients, family members, friends, doctors, office managers, secretaries and nurses have all been extra-busy these last few months raising epilepsy awareness through
1) International Epilepsy Awareness Day in our offices in Manhattan, Morristown and Hackensack and
2) NEREG was featured in the news

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Support Groups

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Our support groups are back up and running through September 2017 to June 2018!

VIRTUAL SUPPORT GROUPS

Psychogenic non-epileptic seizures (PNES) support group
Third Thursday of the month until June: From 12-1PM

The group is for patients at our NEREG PNES program diagnosed with PNES who have completed treatment or who are advanced in their current treatment. Unfortunately, the group is not open to anyone who has not gone through our treatment program because the demand would be too great for our conference call. The group meets to touch base, to go over current problems that may have arisen for group members associated to PNES, for general support and comradery, and to continue to be part of the PNES community.

The NEREG Epilepsy Virtual Support group provides a forum that facilitates and promotes the sharing of common interests, information, and experiences within the epilepsy community. This is an online group which allows you to participate in support activities when you are unable to attend a local support meeting in person; and are managed by a qualified facilitators knowledgeable on Epilepsy-related topics. During these sessions, you have the opportunity to speak with other participants, seek advice, make friends, discover new ideas, share your experiences -- good and bad, and help support others managing epilepsy. Please email rzeng@epilepsygroup.com in order to sign up!


Joining a group is easy!
Benefits:
• All 60-minute sessions are held through GoToMeeting® 
• Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.)
• All groups are led by a facilitator who is knowledgeable about psychogenic non-epileptic seizures. 
• Confidential.
• Participation in this facilitated discussion is expected and encouraged. You are not on camera, so come in your PJs.
• FREE 

CONTACT INFORMATION

If you are a NEREG patient, have epilepsy and would be interested in a similar group, please contact Lmyers@epilepsygroup.com. In the past, we tried to establish an on-line group like this for our patients with epilepsy but there was limited attendance-but who is to say that we can't try again and with better results?

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Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in 2018
Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in 2018

The year of 2018 is looking like it is going to be chock-full of activities that aim to raise epilepsy and seizure awareness.  The National Epilepsy Walk is very close at hand and the amazingly fun Glow Walk Run for the Epilepsy Foundation of NJ is coming around October.  Our annual Northeast Regional Epilepsy Group meeting is also being organized as this newsletter is being completed.  Make sure to read all about them and to mark your calendar to ensure you don't forget about them and make it there in time.

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Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of seventeen board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.

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bullets 20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
bullets 333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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