Northeast Regional Epilepsy Group PNES - PsychologicalNon Epileptic Seizures
Quick Links Newsletter N° 58 | June, 2025

1- Feature Article: Novel treatments for Epilepsy: Progress in the treatment of epilepsy over the last years
2- Safety in Epilepsy: Seizure Prepared U: A Seal of Seizure Safety for colleges and universities in the USA
3- We are excited to feature our Epilepsy Star, Mighty Mike Simmel who has just published his new book: Never Give Up, a book featuring young characters who are living with epilepsy and autism.
4- Epilepsy Survey results: For this issue, we asked our website (epilepsygroup.com) visitors: Do you feel that how people view epilepsy improved in the last 20 years?
5- Our epilepsy and seizures community of patients, family, friends and doctors have been on the move this spring!
6- Stay tuned because in the upcoming months many very cool epilepsy and seizure events are coming up!

 

Feature Article: Novel treatments for Epilepsy: Progress in the treatment of epilepsy over the last years

Over the past five years, epilepsy treatment has progressed remarkably, not only due to innovations in medical technology, and new medications, but also due to a deeper understanding of the mechanisms that are involved in epilepsy.

These developments are especially meaningful for the roughly 30% of patients who have drug-resistant epilepsy, offering new hope for seizure control and improved quality of life. Here’s a look at some of the key developments in the last five years.

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Safety in Epilepsy: Seizure Prepared U: A Seal of Seizure Safety for colleges and universities in the USA
Safety in Epilepsy: Seizure Prepared U: A Seal of Seizure Safety for colleges and universities in the USA

Epilepsy can affect people of all ages and in all types of settings. In all academic settings, students with epilepsy deserve to feel safe and supported while they focus on learning and growing. To ensure this, Epilepsy Alliance America, Epilepsy Services of New Jersey, and Paul’s Purple Warriors have partnered to launch an epilepsy college program, Seizure Prepared U: A Seal of Seizure Safety. This is a unique and much-needed initiative designed to reduce stigma, improve seizure response training, and ensure college campuses are equipped to support all their students who may experience a seizure while enrolled there.

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We are excited to feature our Epilepsy Star, Mighty Mike Simmel who has just published his new book: Never Give Up, a book featuring young characters who are living with epilepsy and autism.
We are excited to feature our Epilepsy Star, Mighty Mike Simmel who has just published his new book: Never Give Up, a book featuring young characters who are living with epilepsy and autism.

Epilepsy Star: For our June issue, we are excited to feature our Epilepsy Star, Mike Simmel who has authored two books on epilepsy (“Mighty Mike bounces back: A boy’s life with epilepsy” and “Never Give up”) and founded the Bounce out the stigma program that runs basketball camps, clinics, and summer camps for children with special needs across the nation.

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Epilepsy Survey results: For this issue, we asked our website (epilepsygroup.com) visitors: Do you feel that how people view epilepsy improved in the last 20 years?
Epilepsy Survey results: For this issue, we asked our website (epilepsygroup.com) visitors: Do you feel that how people view epilepsy improved in the last 20 years?

For this issue, we asked our website (epilepsygroup.com) visitors: Do you feel that how people view epilepsy improved in the last 20 years? Click on this link to see what their responses revealed.

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Our epilepsy and seizures community of patients, family, friends and doctors have been on the move this spring!
Our epilepsy and seizures community of patients, family, friends and doctors have been on the move this spring!

Our epilepsy and seizure community of patients, family, friends and doctors have been on the move this spring! March was especially busy with Paint the Pony Purple, the National Epilepsy Walk, Purple Day, and our epilepsy virtual book club had the honor of being joined by a very special guest, Marc Palmieri, who authored “She danced with lightning.” Also, Dr. Lorna Myers stayed very busy, offering several webinars on psychogenic nonepileptic seizures (PNES) and being interviewed on a couple of podcasts too.

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Support Groups

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VIRTUAL SUPPORT GROUPS

PSYCHOGENIC NON-EPILEPTIC SEIZURES (PNES) SUPPORT GROUP

Second Wednesday of the month from September until June 2025: From 12-1 PM
The group is only for NEREG patients who have completed their treatment at the NEREG PNES Program. We wish we could fit everyone in, but the group is already pretty large as it is. To register or obtain more information: dramyers@yahoo.com

EPILEPSY ADULT SUPPORT GROUP (for patients and loved ones)

Third Wednesday of the month, from September until June 2025

To inquire about it or to join, email dramyers@yahoo.com. The group is for persons with epilepsy (or loved ones) who wish to connect virtually with others also living with epilepsy. The group meets to touch base, to go over challenges that may have arisen for group members associated with epilepsy, for sharing of resources, and for general support and camaraderie.

Joining a group is easy!

Benefits:
• All 60-minute sessions are held through GoToMeeting® 
• Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.)
• All groups are led by a facilitator who is knowledgeable about psychogenic non-epileptic seizures. 
• Confidential.
• Participation in this facilitated discussion is expected and encouraged. You can have your camera on or off-your choice.
• FREE 

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Stay tuned because in the upcoming months many very cool epilepsy and seizure events are coming up!
Stay tuned because in the upcoming months many very cool epilepsy and seizure events are coming up!

Stay tuned because in the upcoming months many very cool epilepsy and seizure events are coming up!

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 iso epilepsy group www.epilepsygroup.com iso epilepsy life links www.epilepsyandsleep.com Follow Us on Facebook

Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of twenty board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.
Launched in 2003, Mid-Atlantic Epilepsy and Sleep Center (MAESC) is a practice located in Bethesda, Maryland that offers neurological services and comprehensive care to children and adults. MAESC consists of six board-certified neurologists who treat epilepsy, multiple sclerosis and other neurological illnesses.


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bullets 20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
bullets 333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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