Northeast Regional Epilepsy Group Epilepsy Life Links
Quick Links Newsletter N° 5 | March, 2012

1- Feature Article: The MEG and how it is used with patients who have medically resistant epilepsy
2- Avoiding Injuries in epilepsy: Safety Place Mat
3- Shining Epilepsy Star: Lennox Gastaut Syndrome Foundation: Christina SanInocencio
4- Survey on Epilepsy Topics: How much do you know about epilepsy and driving?
5- Featured Epilepsy Program: Dravet Collaborative Clinical Research-and Comprehensive Care Network (CCR-CCN)
6- Epilepsy Walks, blogs, fundraisers: our patients and NEREG have been busy
7- Professional honors granted to our epilepsy specialists
8- Upcoming Epilepsy Events: Stay tuned

 

Feature Article: The MEG and how it is used with patients who have medically resistant epilepsy

Drs. Jeffrey Politsky (epileptologist and Co-Director, Atlantic Neurosciences Institute of Epilepsy) and Matt Evans, epileptologist, who operate the newly acquired MEG in Overlook Medical Center (Atlantic Health System), sat with us to answer questions about this new state-of-the-art diagnostic device.  This is the only MEG in the tri-state area and brings a major benefit to epilepsy surgery candidates.
The doctors described what a patient should expect when going through the test, typical things a patient is asked to do for testing and how it is used to map the brain. They also explained how it is useful when planning out surgery.

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Avoiding Injuries in epilepsy: Safety Place Mat
Avoiding Injuries in epilepsy: Safety Place Mat

The Safety Place Mat is a soft, light-weight, injection-molded durable foam rubber mat. It was designed to protect individuals from head, face and upper body injuries while sitting at tables, desks and other surfaces alike.

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Shining Epilepsy Star: Lennox Gastaut Syndrome Foundation: Christina SanInocencio
Shining Epilepsy Star: Lennox Gastaut Syndrome Foundation: Christina SanInocencio

In this issue, our featured epilepsy star is Christina SanInocencio, founder and executive director of the Lennox Gastaut Syndrome (LGS) Foundation. LGS is a rare and severe form of epilepsy.

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Survey on Epilepsy Topics: How much do you know about epilepsy and driving?
Survey on Epilepsy Topics: How much do you know about epilepsy and driving?

In which state are doctors forced by law to report patients being treated for recurrent seizures (epilepsy) to the Motor Vehicle Department?

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Featured Epilepsy Program: Dravet Collaborative Clinical Research-and Comprehensive Care Network (CCR-CCN)
Featured Epilepsy Program: Dravet Collaborative Clinical Research-and Comprehensive Care Network (CCR-CCN)

The Northeast Regional Epilepsy Group in partnership with Dravet.org CCR-CCN offers comprehensive care to children and adults with Dravet Syndrome (Severe Myoclonic Epilepsy of Infancy). Dravet Syndrome is a rare form of epilepsy associated with a genetic mutation (most commonly a SCNA1 mutation) which disrupts normal brain cell function resulting in seizures. Prolonged febrile seizures are frequently seen in the first year of life. Later in life, many different types of seizures may occur. Cognitive disorders, behavioral disorders including autism-spectrum disorders, and other medical disorders can be associated with Dravet Syndrome.

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Epilepsy Walks, blogs, fundraisers: our patients and NEREG have been busy
Epilepsy Walks, blogs, fundraisers: our patients and NEREG have been busy

NEREG staff members: Kim Potts and Bridget Santucci were invited to join the organizing committee for the 2012 Stroll for Epilepsy-epilepsy Foundation of Northeastern NY.

Team NEREG has been preparing for several months for the Washington, DC Epilepsy Walk on March 31.  Fundraising and team member recruitment has been our main goal.  We are thrilled that staff members and patients are going to be walking shoulder to shoulder as a team. 

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Professional honors granted to our epilepsy specialists
Professional honors granted to our epilepsy specialists

Our epileptologists were voted Best Doctors in America and Top Doctors 2011-2012:

Marcelo Lancman, MD
Best Doctors in America 2011-2012
Olgica Laban-Grant, MD
The Best Doctors of America 2011-2012
Jeffrey Politsky, MD
The Best Doctors of America 2011-2012
Castle Connolly New York Metro Area's Top Doctors

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Support Groups

subrayado

All our support groups are back up and running for the next 10 months!

ADULTS WITH EPILEPSY & THEIR CAREGIVERS

2nd Tuesday of every month – 6:30 pm
Wallkill Medical Arts Building
390 Crystal Run Road – Suite 102
Middletown, NY

3rd Monday of every month - 6:00 pm
737 Castleton Ave
Staten Island, NY 10310
(two blocks from Richmond University Medical Center)

1st Thursday of every month - 6:30 pm
White Plains Hospital Medical Library
Davis Avenue & East Post Road
White Plains, NY 10601

3rd Thursday of every month - 6:30 pm
Hackensack University Medical Center
20 Prospect Avenue - Suite 800
Main Conference Room
Hackensack, NJ 07601

1st Tuesday of every month - 6:00 pm
Jersey City Medical Center
355 Grand Street
Conference Room #5
Jersey City, NJ 07302

1st Wednesday of every month -
6:00 pm

Manhattan
820 Second Avenue, Suite 6C
(between 44 and 43rd Streets)

GRUPOS DE APOYO EN ESPAÑOL

2do jueves de cada mes - 6:30 pm
Salon de Conferencia
20 Prospect Ave.
Suite 800
Hackensack, NJ 07601

2do miércoles de cada mes - 6:00 pm
Manhattan
820 Second Avenue, Suite 6C
(between 44 and 43rd Streets)

CONTACT INFORMATION
Lorna Myers, Ph.D.
212-661-7460, option 5
lmyers@epilepsygroup.com

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Upcoming Epilepsy Events: Stay tuned
Upcoming Epilepsy Events: Stay tuned

Epilepsy events:
March 26: Purple Day for epilepsy awareness. Our offices are going to be purple that day.

Walks:
Team Northeast Regional Epilepsy Group will be walking and fundraising for the Epilepsy Foundations at each of these events.  Feel free to come along with us.

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 iso epilepsy group www.epilepsygroup.com iso epilepsy life links www.epilepsylifelinks.com Follow Us on Facebook

Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of seventeen board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.

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bullets 20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
bullets 333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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