Northeast Regional Epilepsy Group Epilepsy Life Links
Quick Links Newsletter N° 34 | June, 2019

1- Feature Article: Epilepsy Services of New Jersey
2- Seizure star: Alyssa D'Amico
3- This issue’s highlight product: Epilepsy beanies
4- Epilepsy Survey results: Have you seen an epileptic seizure on a TV show or movie show improper ways to respond to a seizure (e.g. put something in person's mouth)?
5- Our epilepsy and seizures community of patients, family, friends and doctors has been busy!
6- Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in 2019

 

Feature Article: Epilepsy Services of New Jersey

The Epilepsy Services of New Jersey (previously known as the "Epilepsy Foundation of New Jersey") is a long-standing organization that has been supporting and helping those New Jersey residents who have seizures and their families for many years. Within the last year, a big change took place in that the agency became independent from the Epilepsy Foundation of America and became part of the Epilepsy Alliance of America (EAA).  We wanted to hear all about how these changes will benefit the agency and the people they serve and what changes might we be seeing.

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Seizure star: Alyssa D'Amico
Seizure star: Alyssa D'Amico

Alyssa D'Amico has been chosen to be our Epilepsy Star for our June quarterly newsletter.  In this interview, she tells us about her journey with epilepsy (medications, surgeries, and more) and what she is doing to live to her full potential while also raising epilepsy awareness through her book "Short Circuit: An Epileptic Journey" and her speaking engagements.

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This issue’s highlight product: Epilepsy beanies
This issue’s highlight product: Epilepsy beanies

This issue's highlight product: Epilepsy beanies to wear and raise awareness all around town.  Read the article to learn more about how they were first created and how you could purchase one for yourself.

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Epilepsy Survey results: Have you seen an epileptic seizure on a TV show or movie show improper ways to respond to a seizure (e.g. put something in person's mouth)?
Epilepsy Survey results: Have you seen an epileptic seizure on a TV show or movie show improper ways to respond to a seizure (e.g. put something in person's mouth)?

For this newsletter issue, we asked guests who visited our homepage (www.epilepsygroup.com: Have you seen an epileptic seizure on a TV show or movie show improper ways to respond to a seizure (e.g. put something in the patient's mouth)?
- Yes
- No
- I have never seen a seizure in a movie or TV show

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Our epilepsy and seizures community of patients, family, friends and doctors has been busy!
Our epilepsy and seizures community of patients, family, friends and doctors has been busy!

Our epilepsy and seizures community of patients, family, friends and doctors has been busy!   Even though it has been winter, our doctors, office managers, secretaries and nurses have definitely not slowed down one bit. Instead, they have been extra-busy raising epilepsy and seizure awareness through:
1) Receiving awards and recognition from medical peers
2) publishing scientific articles in peer-reviewed journals,
3) Presenting scientific research findings at an international conference in New York City. 

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Support Groups

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Our support groups are back up and running through September 2018 to June 2019!

VIRTUAL SUPPORT GROUPS

Psychogenic non-epileptic seizures (PNES) support group
Third Tuesday of the month until June: From 12-1PM

The group is for patients at our NEREG PNES program diagnosed with PNES who have completed treatment or who are advanced in their current treatment. Unfortunately, the group is not open to anyone who has not gone through our treatment program because the demand would be too great for our conference call. The group meets to touch base, to go over current problems that may have arisen for group members associated to PNES, for general support and comradery, and to continue to be part of the PNES community. To register or obtain more information: lmyers@epilepsygroup.com

Joining a group is easy!

Benefits:
• All 60-minute sessions are held through GoToMeeting® 
• Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.)
• All groups are led by a facilitator who is knowledgeable about psychogenic non-epileptic seizures. 
• Confidential.
• Participation in this facilitated discussion is expected and encouraged. You are not on camera, so come in your PJs.
• FREE 

CONTACT INFORMATION

If you are a NEREG patient, have epilepsy and would be interested in a similar group, please contact Lmyers@epilepsygroup.com. In the past, we tried to establish an on-line group like this for our patients with epilepsy but there was limited attendance-but who is to say that we can't try again and with better results?

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Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in 2019
Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in 2019

We strive to keep moving all year long in the march against epilepsy and seizures and the upcoming months are no different with educational events,  local epilepsy walks and the Annual American Epilepsy Society Meeting held in Baltimore, MD.

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 iso epilepsy group www.epilepsygroup.com iso epilepsy life links www.epilepsylifelinks.com Follow Us on Facebook

Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of seventeen board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.

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bullets 20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
bullets 333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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