Northeast Regional Epilepsy Group PNES - PsychologicalNon Epileptic Seizures
Quick Links Newsletter N° 35 | September, 2019

1- Staying safe at home when living with epilepsy
2- Seizure Star: Lance Fogan, MD
3- Staying safe with seizures: Plum's® ProtectaCap®
4- Epilepsy Survey results
5- Our epilepsy and seizures community of patients, family, friends and doctors has been busy!
6- Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in 2019

 

Staying safe at home when living with epilepsy

In order to stay safe when living with epilepsy it is important to be aware of some potential dangers that one might encounter.  Even at home there might be risks for injury which are important to know about so you can make sure these are addressed.  Some of the typical risks that can be found in the "safety of your home" involve falls and drops, and dangers around water, heat, and electricity.  The kitchen, bathroom, and even bedroom and living room can all be safe-proofed in important ways.  And once those safety items and ideas are in place, you can gain greater peace of mind.

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Seizure Star: Lance Fogan, MD
Seizure Star: Lance Fogan, MD

Dr. Lance Fogan was our Epilepsy Star in our December 2015 issue.  At that time, he was the new author of "Dings" (a wonderful novel about a family dealing with a child who is failing at school and who only after a series of challenges is eventually diagnosed as having epilepsy), teaching as clinical professor of neurology at UCLA and sponsoring a table at the Epilepsy Foundation of Greater Los Angeles Annual Walk to End Epilepsy where he was planning on discussing epilepsy from a doctor's point of view and highlighting the epilepsy-educational value of DINGS.  It's been nearly four years and here we are checking in with him again to hear what he has been doing since then (spoiler alert: we know he has been incredibly busy in the world of epilepsy and has even become a playwright!

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Staying safe with seizures: Plum's® ProtectaCap®
Staying safe with seizures: Plum's® ProtectaCap®

In this quarterly issue, we are featuring a very important item that is especially useful for individuals who are prone to falls such as those that might occur during seizures.  Head injuries are an especially troubling problem that can accompany a variety of seizures. This product provides peace of mind and added safety.  

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Epilepsy Survey results
Epilepsy Survey results

What is your favorite source of information on epilepsy? Books on epilepsy, On-line articles, YouTube® videos or your neurologist or health professional?  The surprising results are in and it looks like most folks prefer to read on-line articles over speaking directly with their health care provider or reading a whole book. 

 

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Our epilepsy and seizures community of patients, family, friends and doctors has been busy!
Our epilepsy and seizures community of patients, family, friends and doctors has been busy!

Publications: Our group of doctors have been actively conducting research, collaborating with an international group of epilepsy doctors and publishing in peer-reviewed scientific journals.  Drs. Lori Lazar, Firas Taha and Lorna Myers worked on an international collaboration which produced three publications, two of which came out in Epilepsy and Behavior and one in Seizure.

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Support Groups

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Our support groups are back up and running through September 2019 to June 2020!

VIRTUAL SUPPORT GROUPS

Psychogenic non-epileptic seizures (PNES) support group
Third Tuesday of the month until June: From 12-1PM

The group is for patients at our NEREG PNES program diagnosed with PNES who have completed treatment or who are advanced in their current treatment. Unfortunately, the group is not open to anyone who has not gone through our treatment program because the demand would be too great for our conference call. The group meets to touch base, to go over current problems that may have arisen for group members associated to PNES, for general support and comradery, and to continue to be part of the PNES community. To register or obtain more information: lmyers@epilepsygroup.com

Joining a group is easy!

Benefits:
• All 60-minute sessions are held through GoToMeeting® 
• Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.)
• All groups are led by a facilitator who is knowledgeable about psychogenic non-epileptic seizures. 
• Confidential.
• Participation in this facilitated discussion is expected and encouraged. You are not on camera, so come in your PJs.
• FREE 

CONTACT INFORMATION

If you are a NEREG patient, have epilepsy and would be interested in a similar group, please contact Lmyers@epilepsygroup.com. In the past, we tried to establish an on-line group like this for our patients with epilepsy but there was limited attendance-but who is to say that we can't try again and with better results?

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Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in 2019
Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in 2019

We strive to keep moving all year long in the march against epilepsy and seizures and the upcoming months are no different with educational events, local epilepsy walks and even the American Epilepsy Society annual meeting being held in Baltimore, MD.  

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Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of seventeen board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.

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