Northeast Regional Epilepsy Group PNES - PsychologicalNon Epileptic Seizures
Quick Links Newsletter N° 40 | December, 2020

1- Feature Article: Seizures can be scary-how you can increase safety and security in epilepsy
2- Seizure star: Mia Montgomery, author of "On the Floor Again"
3- Epilepsy Survey results: Have you been concerned about Covid-19 and the effect it might have on a person with epilepsy?
4- Our epilepsy and seizures community of patients, family, friends and doctors has been busy!
5- Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in the second half of 2020

 

Feature Article: Seizures can be scary-how you can increase safety and security in epilepsy

Seizures can be scary, especially for the family of someone with epilepsy (parents, spouses, children) as well as for the person with epilepsy (PWE) who may not be conscious during his/her seizures but hears about them later. 

The idea for this article came out of our most recent epilepsy support group meeting when a spouse expressed concern regarding safety and the moderator put together a document with a series of safety items. These were shared with the group members and then it just seemed like a great idea to share this information with our readers as well.  And that is how it came to be that our December feature article is on how to stay safe/safer when living with epilepsy.

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Seizure star: Mia Montgomery, author of "On the Floor Again"
Seizure star: Mia Montgomery, author of

Seizure Star: Mia Montgomery, is the author of "On the Floor Again." Her book is a wonderful memoir that describes the road she traveled with her diagnosis of PNES, the ups and downs and how she has learned to manage the disorder in a way that works for her.  It has helped many living with PNES to read her book, realize they are not alone, and to learn from her unique experience as both a therapist and a patient.

It is for this reason that she has been chosen as the Northeast Regional Epilepsy Group December newsletter Seizure Star.  

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Epilepsy Survey results: Have you been concerned about Covid-19 and the effect it might have on a person with epilepsy?
Epilepsy Survey results: Have you been concerned about Covid-19 and the effect it might have on a person with epilepsy?

Epilepsy Survey results: For this issue, we asked our website (www.epilepsygroup.com) visitors: Have you been concerned about Covid-19 and the effect it might have on a person with epilepsy?

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Our epilepsy and seizures community of patients, family, friends and doctors has been busy!
Our epilepsy and seizures community of patients, family, friends and doctors has been busy!

Our epilepsy and seizures community of patients, relatives, friends and doctors has been busy! Although Covid-19 is still very much present, our staff continue to put their best efforts forward to keep life moving towards normalcy.  

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Support Groups

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VIRTUAL SUPPORT GROUPS

PSYCHOGENIC NON-EPILEPTIC SEIZURES (PNES) SUPPORT GROUP

Third Wednesday of the month from 1PM to 2PM

The group is for patients at our NEREG PNES program diagnosed with PNES who have completed treatment or who are advanced in their current treatment. Unfortunately, the group is not open to anyone who has not gone through our treatment program because the demand would be too great for our conference call. The group meets to touch base, to go over current problems that may have arisen for group members associated to PNES, for general support and comradery, and to continue to be part of the PNES community. To register or obtain more information: lmyers@epilepsygroup.com

EPILEPSY SUPPORT GROUP

Third Wednesday of the month from 12PM to 1PM

The group is for persons with epilepsy who wish to connect virtually with others also living with epilepsy. The group meets to touch base, to go over challenges that may have arisen for group members associated to epilepsy, for general support and camaraderie. To register or obtain more information: lmyers@epilepsygroup.com


Joining a group is easy!

Benefits:
• All 60-minute sessions are held through GoToMeeting® 
• Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.)
• All groups are led by a facilitator who is knowledgeable about psychogenic non-epileptic seizures. 
• Confidential.
• Participation in this facilitated discussion is expected and encouraged. You can have your camera on or off-your choice.
• FREE 

CONTACT INFORMATION

If you are a NEREG patient, have epilepsy and would be interested in a similar group, please contact lmyers@epilepsygroup.com. In the past, we tried to establish an on-line group like this for our patients with epilepsy but there was limited attendance-but who is to say that we can't try again and with better results?

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Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in the second half of 2020
Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in the second half of 2020

Stay tuned for epilepsy on the move: Who is not expectantly waiting for 2020 to be over?! Can we all agree this year has been one for the books?!  Well, luckily, 2021 is right around the corner and here are a few activities coming up in the much-awaited new year.  

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 iso epilepsy group www.epilepsygroup.com iso epilepsy life links www.nonepilepticseizures.com Follow Us on Facebook

Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of seventeen board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.

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