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Newsletter N° 54 | June, 2024 |
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Feature Article: Summer is here! How to keep safe when you are living with epilepsy and seizures.
Who isn’t waiting for the long winter months to be over and for the bright summer days to arrive? Summer weather, time off from school, and longer days invite us to abandon our winter hibernation, becoming more active through all sorts of activities (e.g., barbecues, summer vacations, beach trips or lounging by the swimming pool, outdoor sports, and much more). To get the most out of these warm seasonal pastimes and to avoid unpleasant emergencies, it is important to keep epilepsy safety in mind.
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| Our epilepsy and seizures community of patients, family, friends and doctors has been busy. |
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Our NEREG team has been very busy during these past months. A major update is that NEREG epileptologists and Cooperman Barnabas Medical Center (CBMC) have come together to provide exceptional care to adult and pediatric patients with epilepsy at CMBC. Enrique Feoli, MD, is now the Director of the CBMC Adult Epilepsy Program, Lorraine Lazar, MD, PhD, is the Director of the CBMC Pediatric Epilepsy Program, and Rajeshwari Mahalingam, MD, is the Director of Pediatric Neurology at CBMC.
Other epilepsy-related events that occurred in the last few months include that NEREG/MAESC met for our quarterly virtual epilepsy book club with four members participating in a lively conversation about our book selection, “A mind unraveled” by Kurt Eichenwald. Also, our monthly virtual epilepsy support group met in March, April and May.
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Support Groups
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VIRTUAL SUPPORT GROUPS
PSYCHOGENIC NON-EPILEPTIC SEIZURES (PNES) SUPPORT GROUP
Resuming in September 2024 - (Fourth Wednesday of the month From 12-1 PM)
The group is only for patients at our NEREG Psychogenic non-epileptic seizures (PNES) program. They have been diagnosed with PNES and have completed their treatment at the NEREG PNES Program. To register or obtain more information: dramyers@yahoo.com
EPILEPSY ADULT SUPPORT GROUP (for patients and loved ones)
Resuming in September 2024 - (Monthly meetings)
To inquire about it or to join, email dramyers@yahoo.com. The group is for persons with epilepsy (or loved ones) who wish to connect virtually with others also living with epilepsy. The group meets to touch base, to go over challenges that may have arisen for group members associated with epilepsy, for sharing of resources, and for general support and camaraderie.
Joining a group is easy!
Benefits:
• All 60-minute sessions are held through GoToMeeting®
• Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.)
• All groups are led by a facilitator who is knowledgeable about psychogenic non-epileptic seizures.
• Confidential.
• Participation in this facilitated discussion is expected and encouraged. You can have your camera on or off-your choice.
• FREE
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Stay tuned for upcoming epilepsy and seizure disorder events from now until the end of 2024! These include our epilepsy book club meetings, Walk for the One, and Epilepsy Awareness Month, to name just a few.
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Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of twenty board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.
Launched in 2003, Mid-Atlantic Epilepsy and Sleep Center (MAESC) is a practice located in Bethesda, Maryland that offers neurological services and comprehensive care to children and adults. MAESC consists of six board-certified neurologists who treat epilepsy, multiple sclerosis and other neurological illnesses.
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20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
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333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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