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Newsletter N° 46 | June, 2022 |
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Feature article: Support for parents of children who have epilepsy: Resources and ideas
If you ask a parent of a child who has epilepsy, they will tell you that there is nothing as scary as seeing their child have that first seizure because it seemed to go on forever and it was terrifying and confusing.
And then, once the diagnosis of epilepsy is established, there are other challenges that the parents and the child face. This article focuses on the parents' wellbeing which is very often overlooked when caring for a child with a long-standing illness.
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| Epilepsy Star: Josie Martinez: Author of Lucky feels Fuzzy and epilepsy Warrior |
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Epilepsy Star: the Epilepsy Star featured in our June 2022 issue is Josie Martinez, author of a children's book and epilepsy warrior. Josie Martinez recently published her book Lucky Feels Fuzzy which is a wonderful book for children in which the main character, a little kitten with epilepsy has an aura and tries to describe it to his parents and then tries to manage it in different ways.
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Support Groups
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VIRTUAL SUPPORT GROUPS
PSYCHOGENIC NON-EPILEPTIC SEIZURES (PNES) SUPPORT GROUP
Third Wednesday of the month from September until June: From 1-2 PM
The group is for patients at our NEREG Psychogenic non-epileptic seizures (PNES) program diagnosed with PNES who have completed treatment or who are advanced in their current treatment at NEREG. To register or obtain more information: lmyers@epilepsygroup.com
EPILEPSY ADULT SUPPORT GROUP (for patients and loved ones)
Third Wednesday of the month from September until June: 12-1PM
The group is for persons with epilepsy (or loved ones) who wish to connect virtually with others also living with epilepsy. The group meets to touch base, to go over challenges that may have arisen for group members associated with epilepsy, for sharing of resources, and for general support and camaraderie. To register or obtain more information: lmyers@epilepsygroup.com
Joining a group is easy!
Benefits:
• All 60-minute sessions are held through GoToMeeting®
• Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.)
• All groups are led by a facilitator who is knowledgeable about psychogenic non-epileptic seizures.
• Confidential.
• Participation in this facilitated discussion is expected and encouraged. You can have your camera on or off-your choice.
• FREE
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Stay tuned: There are plenty of upcoming activities that you may want to jot down and keep in mind over the next few months. These include the launch of Northeast Regional Epilepsy Group (NEREG) and Mid-Atlantic Epilepsy and Sleep Center's (MAESC's) Wellness Program with online chess lessons for our patients as well as the American Epilepsy Society (AES) Annual Meeting that will take place in Nashville, TN in December.
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Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of twenty board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.
Launched in 2003, Mid-Atlantic Epilepsy and Sleep Center (MAESC) is a practice located in Bethesda, Maryland that offers neurological services and comprehensive care to children and adults. MAESC consists of six board-certified neurologists who treat epilepsy, multiple sclerosis and other neurological illnesses.
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20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
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333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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