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Newsletter N° 48 | December, 2022 |
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Feature article: The siblings of a child who has epilepsy: What do we know?
Often, the child who has epilepsy is not an only child. However, the unexpected, scary, and urgent nature of seizures can result in parents or caregivers giving proportionally more time and attention the child who is unwell than to others in the household. It can be difficult to pay equal attention to all the kids when one child has a comparably greater need. There are only so many hours in the day; parents may be juggling numerous responsibilities (in and out of the home) and as a result, it is not surprising that healthy siblings at times receive a bit less focus.
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| Our epilepsy and seizures community of patients, family, friends and doctors has been busy! |
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Our epilepsy and seizures community of patients, family, friends and doctors has been busy! The Northeast Regional Epilepsy Group and partner, Mid-Atlantic Epilepsy and Sleep Center have kept up with their Wellness in Epilepsy Program launching a virtual book club in November (National Epilepsy Month), proudly sponsoring the 9th Annual Walk and Run for Epilepsy in Piscataway, NJ, and on the first week of December, several NEREG health professionals flew down to Nashville, TN to participate in the American Epilepsy Society annual meeting.
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Support Groups
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VIRTUAL SUPPORT GROUPS
PSYCHOGENIC NON-EPILEPTIC SEIZURES (PNES) SUPPORT GROUP
Fourth Wednesday of the month from September until June: From 12-1 PM
The group is for patients at our NEREG Psychogenic non-epileptic seizures (PNES) program diagnosed with PNES who have completed their treatment or who are advanced in their current treatment at NEREG. It is not open to the general public. To register or obtain more information: lmyers@epilepsygroup.com
EPILEPSY ADULT SUPPORT GROUP (for patients and loved ones)
Third Wednesday of the month from September until June: 12-1PM
The group is for persons with epilepsy (or loved ones) who wish to connect virtually with others also living with epilepsy. The group meets to touch base, to go over challenges that may have arisen for group members associated with epilepsy, for sharing of resources, and for general support and camaraderie. To register or obtain more information: lmyers@epilepsygroup.com
Joining a group is easy!
Benefits:
• All 60-minute sessions are held through GoToMeeting®
• Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.)
• All groups are led by a facilitator who is knowledgeable about psychogenic non-epileptic seizures.
• Confidential.
• Participation in this facilitated discussion is expected and encouraged. You can have your camera on or off-your choice.
• FREE
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Stay tuned: There are plenty of upcoming activities that you may want to jot down and keep in mind over the next few months. In February, International Epilepsy Day will be celebrated all over the world and NEREG/MAESC will be hosting our second book club meeting.
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Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of twenty board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.
Launched in 2003, Mid-Atlantic Epilepsy and Sleep Center (MAESC) is a practice located in Bethesda, Maryland that offers neurological services and comprehensive care to children and adults. MAESC consists of six board-certified neurologists who treat epilepsy, multiple sclerosis and other neurological illnesses.
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20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
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333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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