Our epilepsy and seizures community of patients, family, friends and doctors has been busy!
Our epilepsy and seizures community including our patients, family, friends and doctors has been busy! International Epilepsy Day and a webinar on PNES hosted by the International Society for the Study of Trauma and Dissociation (ISSTD).
a) January 28, 2022: Dr. Gaston Baslet (Brigham and Women's Hospital) and Dr. Lorna Myers (NEREG) presented at the ISSTD webinar on a novel treatment for psychogenic non-epileptic seizures (PNES). Dr. Baslet discussed his mindfulness-based treatment for adults with PNES.
b) February 14, 2022 (Valentine's Day): International Epilepsy Day:
This day is a joint initiative of the International Bureau for Epilepsy (IBE) and the International League against Epilepsy (ILAE) celebrated across the globe in the 120 of countries in which IBE and ILAE are represented. The International Epilepsy Day is an exceptional epilepsy event and most astoundingly, it is celebrated simultaneously around the world.
This is a day for everyone, no matter where you are in all of the USA or the world, no matter whether it is just you or a whole group of you. We want you to help us celebrate and highlight the difficulties faced by those who live with epilepsy on International Epilepsy Day! Let's speak with one global voice. Remember that PURPLE is the official awareness color of epilepsy--you can wear purple clothes, hair extensions, nail polish, deck your home, car, or office in purple. Our offices celebrated the day our patients.
https://internationalepilepsyday.org/
c) Jazz Pharmaceuticals hosted a live case study presentation with Eric Segal, MD, Pediatric Neurologist from the Hackensack University Medical Center, on Thursday, February 10, 2022 at 5:30 PM EST. Dr. Segal focused on the recognition and treatment of rare epilepsies through the case presentation featuring one of his patients.
d) On a national level, Dr. Eric Segal led the Epilepsy Symposium at the 3rd Annual International Congress on the Future of Neurology.
e) Research and Publications: Dr. Eric Segal has been active in research and publications in the last year.
Segal EB, Tarquinio D, Miller I, Wheless JW, Dlugos D, Biton V, Cascino GD, Desai J, Hogan RE, Liow K, Sperling MR. Evaluation of diazepam nasal spray in patients with epilepsy concomitantly using maintenance benzodiazepines: An interim subgroup analysis from a phase 3, long‐term, open‐label safety study. Epilepsia. 2021 Jun;62(6):1442-50.
Wheless JW, Miller I, Hogan RE, Dlugos D, Biton V, Cascino GD, Sperling MR, Liow K, Vazquez B, Segal EB, Tarquinio D. Final results from a Phase 3, long‐term, open‐label, repeat‐dose safety study of diazepam nasal spray for seizure clusters in patients with epilepsy. Epilepsia. 2021 Oct;62(10):2485-95.
Miller I, Wheless JW, Hogan RE, Dlugos D, Biton V, Cascino GD, Sperling MR, Liow K, Vazquez B, Segal EB, Tarquinio D. Consistent safety and tolerability of Valtoco®(diazepam nasal spray) in relationship to usage frequency in patients with seizure clusters: Interim results from a phase 3, long‐term, open‐label, repeat‐dose safety study. Epilepsia Open. 2021 May 5.
Segal, E. at. Al. Design of Study 236: A Phase II, Multicenter, Open-label, Single-Arm Study of Adjunctive Perampanel in Patients (Aged 1 month-< 18 years) with Childhood Epilepsy, American Epilepsy Society 2021.
Dr. Lorna Myers was a co-author on the following publication featuring research that was conducted in the Czech Republic.
Krámská, L, Myers, L, Hrešková, L, Krámský, D, Chvál, M, Vojtěc, Z (2022) Neuropsychological performance and effort in patients diagnosed with psychogenic non-epileptic seizures -- descriptive study of a Czech sample. Epilepsy & Behav.
