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Our epilepsy and seizures community of patients, family, friends and doctors has been busy!

Our epilepsy and seizures community of patients, family, friends and doctors has been busy!  The Northeast Regional Epilepsy Group and partner, Mid-Atlantic Epilepsy and Sleep Center have kept up with their Wellness in Epilepsy Program launching a virtual book club in November (National Epilepsy Month), proudly sponsoring the 9th Annual Walk and Run for Epilepsy in Piscataway, NJ, and on the first week of December, several NEREG health professionals flew down to Nashville, TN to participate in the American Epilepsy Society annual meeting.  

October 23

9th Annual Walk and Run for Epilepsy

Epilepsy Services of New Jersey hosted its now traditional and very fun Halloween themed 5K walk/run complete with assorted activities and resources for families to enjoy while aiding Epilepsy Services of NJ in raising much needed funds and awareness.  These funds are directly used for services for NJ residents living with epilepsy and seizures. 


November 01

November: Epilepsy Awareness month

November gave us 30 days to shine a light on epilepsy and seizures and to educate others.

The Northeast Regional Epilepsy Group team leader in all the most recent epilepsy walks, Mary Holtz, had an amazing way to raise awareness in the month of November.  She lobbied to have her town's gazebo illuminated in purple for Epilepsy Awareness Month (see picture).

 

November 18

Wellness in Epilepsy Program: Book Club for Northeast Regional Epilepsy Group and Mid-Atlantic Epilepsy and Sleep Center Patients

As part of our Wellness Program, NEREG and MAESC launched an on-line epilepsy and seizure-themed Book Club this fall!  The club selects a book and every three months we "meet" online to talk about it: readers' impressions, opinions, critiques.  Books are selected based on their relevance to epilepsy, such as books that have a fictional or non-fictional character with epilepsy or seizures.  Our first book was "The Spirit Catches You and You Fall Down" by Anne Fadiman.  This book tells the true story of the clash between a small hospital in California and a refugee family from Laos over the care of Lia Lee, a Hmong child diagnosed with severe epilepsy.  This eye-opening tale raises interesting issues with respect to how seizures are viewed and treated in other cultures and how clashes with Western medicine can complicate things further.

 

December 2-6: 

The American Epilepsy Society hosted its annual meeting which is now increasingly in-person, after a couple of years of virtuality due to the pandemic.  Our doctors and health professionals were thrilled to attend this year's convention, held in the beautiful city of Nashville, TN.  It was great to see acquaintances, friends, and colleagues face-to-face after several years of only seeing everyone on a computer screen.  Excellent lectures were available to attend, novel research was shared with attendees and many not-for-profits that work with epilepsy and seizures were able to highlight their work while there.  

Looking forward to next year's American Epilepsy Society's convention in Orlando, FL on December 1-5, 2023

 


* Photo courtesy of Mary Holtz who lobbied to have her town's gazebo illuminated in purple for Epilepsy Awareness Month

 

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