Epilepsy Community on the Move: Stay tuned for upcoming epilepsy and seizure disorder events from now until the end of 2024!
Stay tuned for upcoming epilepsy and seizure disorder events from now until the end of 2024! These include our epilepsy book club meetings, Walk for the One, and Epilepsy Awareness Month, to name just a few.
September 20, 2024:
The Epilepsy Book club will be reading "Patient HM: A Story of memory, madness and family secrets" by Luke Dittrich this time around.
As part of our Wellness Program, NEREG and MAESC host an on-line epilepsy and seizure-themed Book Club every 4 months! Everyone in the group reads the book on their own, then "meets" online to talk about it: impressions, opinions, critiques. Books are selected based on their relevance to epilepsy, such as books that have a fictional or non-fictional character with epilepsy or that is written by a person living with epilepsy. The group will vote on the upcoming books to read. To register for the next book club, write to lmyers@epilepsygroup.com and start reading over the summer!
Synopsis of "Patient HM: A Story of memory, madness and family secrets" by Luke Dittrich
In 1953, a twenty-seven-year-old factory worker named Henry Molaison--who suffered from severe epilepsy--received a radical new version of the then-common lobotomy, targeting the most mysterious structures in the brain. The operation failed to eliminate Henry's seizures, but it did have an unintended effect: Henry was left profoundly amnesic, unable to create long-term memories. Over the next sixty years, Patient H.M., as Henry was known, became the most studied individual in the history of neuroscience, a human guinea pig who would teach us much of what we know about memory today.
Patient H.M. is, at times, a deeply personal journey. Dittrich's grandfather was the brilliant, morally complex surgeon who operated on Molaison--and thousands of other patients. The author's investigation into the dark roots of modern memory science ultimately forces him to confront unsettling secrets in his own family history, and to reveal the tragedy that fueled his grandfather's relentless experimentation--experimentation that would revolutionize our understanding of ourselves.
Dittrich uses the case of Patient H.M. as a starting point for a kaleidoscopic journey, one that moves from the first recorded brain surgeries in ancient Egypt to the cutting-edge laboratories of MIT. He takes readers inside the old asylums and operating theaters where psychosurgeons, as they called themselves, conducted their human experiments, and behind the scenes of a bitter custody battle over the ownership of the most important brain in the world.
Patient H.M. combines the best of biography, memoir, and science journalism to create a haunting, endlessly fascinating story, one that reveals the wondrous and devastating things that can happen when hubris, ambition, and human imperfection collide.
Winner of the PEN/E.O. Wilson Literary Science Writing Award * Los Angeles Times Book Prize Winner
NAMED ONE OF THE BEST BOOKS OF THE YEAR BY
The Washington Post * New York Post * NPR * The Economist * New York * Wired * Kirkus Reviews * BookPage
https://epilepsygroup.com/news6-170/epilepsy-book-club.htm
October 20, 2024 at 9AM:
Epilepsy Services of New Jersey’s Walk For The One is a family friendly walk, complete with activities and resources to enjoy while helping ESNJ raise the necessary funds to improve the quality of life for those living with epilepsy and to spread awareness. Look into it and maybe join team NEREG.
https://www.familyresourcenetwork.org/walk-for-the-one/
https://epilepsygroup.com/news6-169/walk-for-the-one-epilepsy-services-of-new-jersey.htm
https://epilepsygroup.com/news6-168/november-epilepsy-awareness-month.htm
November is National Epilepsy Awareness Month
Let's use all 30 days of November to shine a light on epilepsy and seizures and to educate all who will listen.
Did you know that 1 in 26 people will be diagnosed with epilepsy at some point in their lifetime? Probably a majority of people you mention this to don't know this important statistic. There are many other equally significant facts to share this month.
https://epilepsygroup.com/news_patients_providers6-20-2-361/november-epilepsy-awareness-month.htm
