Northeast Regional Epilepsy Group Epilepsy Life Links
Quick Links Newsletter N° 8 | December, 2012

1- Stigma in Epilepsy - Feature Article
2- Safety in epilepsy-checking oxygen levels during sleep - Masimo Rad-57
3- Shining epilepsy star-Ron Lamontagne-Founder of the Purple Pumpkin Project
4- Epilepsy prevalence: How much do you know about epilepsy? How common is epilepsy? Survey results
5- Tumor and Epilepsy Consortium: Featured Northeast Regional Epilepsy Program
6- Epilepsy Activities Fall 2012: Epilepsy education, American Epilepsy Society, Purple Knitting club, Epilepsy Spoken Word, Purple Pumpkin Project for epilepsy. Northeast Regional Epilepsy Group
7- Our epilepsy specialists in New York and New Jersey have been working hard
8- Stay Tuned for upcoming epilepsy activities in New York, New Jersey, Connecticut in 2013

 

Stigma in Epilepsy - Feature Article

Enrique Feoli, M.D. is the co-director of the Epilepsy Program at Hackensack University Medical Center and co-director of the Northeast Regional Epilepsy Group’s International Program. He sat down with us to discuss a topic he is passionate about: Epilepsy: Myths and Truths.  Epilepsy has existed throughout history and over time many misconceptions and misunderstandings about the condition have appeared. Dr. Feoli goes over some of these as well as presenting some important epilepsy myth busters that should be shared with loved ones and the general public.

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Safety in epilepsy-checking oxygen levels during sleep - Masimo Rad-57
Safety in epilepsy-checking oxygen levels during sleep - Masimo Rad-57

A concern for many parents and patients is that a prolonged epileptic seizure may result in low oxygen levels which could be dangerous and which might go unnoticed at night or when alone. Pulse oximeters are non-invasive medical devices that typically attach to a fingertip or a toe to measure heart rate and blood oxygenation percentage —both vital statistics that can be affected while a person is seizing. These devices are not specifically designed or manufactured to detect epileptic seizures, but pulse oximeters do have monitoring and alarm-sounding functions that can be useful to some who has epilepsy and experience seizures. Whether this might be a useful device to own should be discussed with your doctor/s and depends on the individual case.

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Shining epilepsy star-Ron Lamontagne-Founder of the Purple Pumpkin Project
Shining epilepsy star-Ron Lamontagne-Founder of the Purple Pumpkin Project

Mr. Ron Lamontagne is a one-of-a-kind of dad who has in a short time taken on seizures and epilepsy and epilepsy stigma and ignorance head on and he is just getting started. This year he established what became in no time at all a countrywide movement to raise epilepsy awareness. He called his project, the Purple Pumpkin Project. He did all of this with his Facebook page, a newspaper article in a local paper, and the strength of the epilepsy community. So, we can't wait to see what he has planned for 2013. Epilepsy ignorance: watch out!

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Epilepsy prevalence: How much do you know about epilepsy? How common is epilepsy? Survey results
Epilepsy prevalence: How much do you know about epilepsy? How common is epilepsy? Survey results

This Epilepsy newsletter issue, we asked a question about epilepsy prevalence to see how much the public knows about how common epilepsy is. The results that came back are pretty good although we still have 13% to teach.

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Tumor and Epilepsy Consortium: Featured Northeast Regional Epilepsy Program
Tumor and Epilepsy Consortium: Featured Northeast Regional Epilepsy Program

Dr. Jeffrey Politsky is the Associate Director of the Northeast Regional Epilepsy Group in New Jersey, the Co-Director of Research and Medical Director of the MEG & Functional Brain Mapping Center of the Northeast Regional Epilepsy Group and the Atlantic Neuroscience Institute Epilepsy Center. One of his main clinical interests is epilepsy in tumor patients.  He has been instrumental in fouding the tumor-related epilepsy research consortium which is growing into a multi-center, multi-national consortium that consists of a team of clinical experts, including epilepsy specialists, neurosurgeons, neuro-oncologists, and neuro-psychologists whose main interest is tumor-induced epilepsy.  He sat with us to tell us more about epilepsy and brain tumors as well as future directions in this novel field.

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Epilepsy Activities Fall 2012: Epilepsy education, American Epilepsy Society, Purple Knitting club, Epilepsy Spoken Word, Purple Pumpkin Project for epilepsy. Northeast Regional Epilepsy Group
Epilepsy Activities Fall 2012: Epilepsy education, American Epilepsy Society, Purple Knitting club, Epilepsy Spoken Word, Purple Pumpkin Project for epilepsy. Northeast Regional Epilepsy Group

The Northeast Regional Epilepsy Group organized the Epilepsy: Knowledge is Power campaign in 2012 that spanned three states (NY, NJ, and CT) and reached hundreds, including patients, loved ones, nurses and doctors. 

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Our epilepsy specialists in New York and New Jersey have been working hard
Our epilepsy specialists in New York and New Jersey have been working hard

Our epilepsy specialists have worked tirelessly the second half of 2013 to contribute to scientific research and publications in epilepsy and seizures.  Several of our doctors occupied active roles at the American Epilepsy Society in December at San Diego, California.  And since coming back home, they have continued to network with colleagues from across the US and abroad to continue the work that needs to get done to tackle epilepsy

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Support Groups

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Our support groups will be running through June 2013!

ADULTS WITH EPILEPSY & THEIR CAREGIVERS

2nd Tuesday of every month – 6:30 pm
Wallkill Medical Arts Building
390 Crystal Run Road – Suite 102
Middletown, NY

3rd Monday of every month - 6:00 pm
737 Castleton Ave
Staten Island, NY 10310
(two blocks from Richmond University Medical Center)

1st Thursday of every month - 6:30 pm
White Plains Hospital Medical Library
Davis Avenue & East Post Road
White Plains, NY 10601

3rd Wednesday of every month - 6:30 pm
Hackensack University Medical Center
20 Prospect Avenue - Suite 800
Main Conference Room
Hackensack, NJ 07601

1st Tuesday of every month - 6:00 pm
Jersey City Medical Center
355 Grand Street
Conference Room #5
Jersey City, NJ 07302

GRUPOS DE APOYO EN ESPAÑOL

2do jueves de cada mes - 6:30 pm
Salon de Conferencia
20 Prospect Ave.
Suite 800
Hackensack, NJ 07601

CONTACT INFORMATION
Lorna Myers, Ph.D.
212-661-7460, option 5
lmyers@epilepsygroup.com

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Stay Tuned for upcoming epilepsy activities in New York, New Jersey, Connecticut in 2013
Stay Tuned for upcoming epilepsy activities in New York, New Jersey, Connecticut in 2013

April 20, 2013: National Epilepsy Walk in Washington, DC.  Team Northeast Regional Epilepsy Group welcomes you to join us when we walk in 2013 to raise much needed funds for epilepsy research and services.

June 22, 2013: Overlook Hospital-Epilepsy Conference Series: What you need to know if epilepsy has touched your life.

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 iso epilepsy group www.epilepsygroup.com iso epilepsy life links www.epilepsylifelinks.com Follow Us on Facebook

Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of nine board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.

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bullets 20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
bullets 333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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