Northeast Regional Epilepsy Group Epilepsy Life Links
Quick Links Newsletter N° 12 | December, 2013

1- Epilepsy Truths and Myths: Education is the most powerful weapon
2- Shining Epilepsy Star – Theresa Romeo and Ryan
3- Epilepsy Survey Results: Would you participate in epilepsy research?
4- Featured Northeast Regional Epilepsy Group Program Pediatric epilepsy
5- Epilepsy Activities end of year (2013): Epilepsy webinars, seminars, Purple Pumpkin Project
6- Our epilepsy specialists in New York and New Jersey are actively working
7- Upcoming events for epilepsy in New York, Connecticut, and New Jersey for 2014

 

Epilepsy Truths and Myths: Education is the most powerful weapon

Medical Director of the Northeast Regional Epilepsy Group and author of What You Need to Know if Epilepsy Has Touched Your Life: A Guide in Plain English, Dr. Marcelo Lancman sat with us to talk about a very important topic in epilepsy: Myths and Truths about epilepsy. Epilepsy has a very long history.  Modern medicine has only recently developed the tools to properly diagnose epilepsy and to differentiate epileptic and non-epileptic seizures.  Ignorance and misunderstandings about epilepsy however have been around for thousands of years.  Epilepsy education is a topic that Dr. Lancman feels very strongly about in that this is the way to combat ignorance and stigma. 

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Shining Epilepsy Star – Theresa Romeo and Ryan
Shining Epilepsy Star – Theresa Romeo and Ryan

Shining Epilepsy Stars: Theresa Romeo (mother, advocate, and speaker) and her son, Ryan. Theresa Romeo is a mother and epilepsy star in all that she has done for her son, Ryan, and for the Dravet’s Syndrome community.  She has used the short amount of time she has available to her to do wonders for epilepsy, working with the Northeast Regional Epilepsy Group to teach and talk about Dravet’s syndrome, the ketogenic diet and epilepsy through a YouTube video which is now also on TV.  For this reason, she is this issue's Epilepsy Star and we salute her.

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Epilepsy Survey Results: Would you participate in epilepsy research?
Epilepsy Survey Results: Would you participate in epilepsy research?

Have you ever participated in a research study of a new anti-epileptic medication or device? Research is the way in which science makes new treatment discoveries and can work towards reaching a cure for epilepsy. 

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Featured Northeast Regional Epilepsy Group Program Pediatric epilepsy
Featured Northeast Regional Epilepsy Group Program Pediatric epilepsy

One out of every hundred children in the US carries a diagnosis of pediatric epilepsy.  If a child is affected by this condition, he or she should receive the best diagnostic and medical care available. The Northeast Regional Epilepsy Group Pediatric Epilepsy Program specializes in evaluating and treating children with epilepsy. We are proud to have brought three exceptional pediatric epileptologists to the northeast area of the USA as part of our continuing efforts to improve the life of people with epilepsy.  Pediatric epileptologists are unique in that they have completed a Pediatric residency as well as fellowship training in epilepsy and neurology.  Their Board certifications reflect this specialized training. Our pediatric epilepsy program includes: Dr. Eric Segal, Dr. Stephanie Jean-Baptiste Berry and Dr. Adenike Opaleke.  

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Epilepsy Activities end of year (2013): Epilepsy webinars, seminars, Purple Pumpkin Project
Epilepsy Activities end of year (2013): Epilepsy webinars, seminars, Purple Pumpkin Project

Epilepsy Activities at the end of year 2013-Patients and Northeast Regional Epilepsy Group staff have been working together for months to make the fall of 2013 a superb one for epilepsy. The Purple Pumpkin Project and our New York and New Jersey Wellness in Epilepsy activities brought patients, family members and professionals together with one goal: making life with epilepsy better. 

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Our epilepsy specialists in New York and New Jersey are actively working
Our epilepsy specialists in New York and New Jersey are actively working

Our epilepsy specialists in New York, New Jersey and Connecticut have been very active this year writing books on epilepsy, teaching about epilepsy through webinars and live conferences, and participating in many activities at the American Epilepsy Society!  Every one of these activities moves epilepsy forward in the right direction.

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Support Groups

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Our support groups are back up and running through September 2013 to June 2014!

ADULTS WITH EPILEPSY & THEIR CAREGIVERS

1st Thursday of every month - 6:30 pm
White Plains Hospital Centennial Room
Davis Avenue & East Post Road
White Plains, NY 10601

3rd Wednesday of every month - 6:30 pm
Hackensack University Medical Center
20 Prospect Avenue - Suite 800
Main Conference Room
Hackensack, NJ 07601

1st Tuesday of every month - 6:00 pm
Jersey City Medical Center
355 Grand Street
Conference Room #5
Jersey City, NJ 07302

1st Wednesday of every month - 6:00 pm
Manhattan office
820 Second Avenue, Suite 6C
New York NY 10017

CONTACT INFORMATION

Lorna Myers, Ph.D.
212-661-7460, option 5
lmyers@epilepsygroup.com

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Upcoming events for epilepsy in New York, Connecticut, and New Jersey for 2014
Upcoming events for epilepsy in New York, Connecticut, and New Jersey for 2014

Team Northeast Regional Epilepsy Group welcomes you to join us when we walk in 2014 to raise much needed funds for epilepsy research and services for the American Epilepsy Society. Last year, our team won the American Epilepsy Society Cup (formerly known as the Yale Cup) because we were the biggest fundraisers.  We also had a massive team with members coming from all over NY, NJ, CT and PA!  

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 iso epilepsy group www.epilepsygroup.com iso epilepsy life links www.epilepsylifelinks.com Follow Us on Facebook

Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of seventeen board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.

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bullets 20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
bullets 333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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