Northeast Regional Epilepsy Group Epilepsy Life Links
Quick Links Newsletter N° 24 | December, 2016

1- Psychogenic non-epileptic seizures: a health condition that is still unknown by many professionals and the general public alike - Feature Article
2- Epilepsy Star: Margaret Mendez
3- Epilepsy Survey results
4- Our epilepsy community of patients, family, friends and doctors has been busy
5- Epilepsy on the Move: Stay Tuned for upcoming epilepsy and seizure disorder events and news in 2017

 

Psychogenic non-epileptic seizures: a health condition that is still unknown by many professionals and the general public alike - Feature Article

Psychogenic non-epileptic seizures (PNES): a very serious health disorder that has somehow fallen in a black hole between neurology and psychology 

Our feature article in this quarterly issue focuses on a serious health condition that is seen with quite a bit of frequency at epilepsy centers across the country and the globe: psychogenic non-epileptic seizures (PNES).  

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Epilepsy Star: Margaret Mendez
Epilepsy Star: Margaret Mendez

Margaret Mendez has been chosen as an Epilepsy Star because of her passion in fighting for epilepsy awareness and raising the bar for the standard of care and compassion.  She has lived with epilepsy for many years of her life but has never let this stop her and by the looks of it, she is going stronger than ever.

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Epilepsy Survey results
Epilepsy Survey results

Every issue, we feature a survey that has been posted on our epilepsygroup.com homepage and where our visitors have had the chance to show how much they know about epilepsy and seizures.  

Over the last few months we asked our visitors if epilepsy is the most common neurological condition in humans?  Or if there are other neurological conditions that are more common.  

The answers revealed....

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Our epilepsy community of patients, family, friends and doctors has been busy
Our epilepsy community of patients, family, friends and doctors has been busy

Patients, family members, friends, doctors, office managers, nurses, and staff family members have all been extra-busy these last few months raising much needed funds for epilepsy and psychogenic non-epileptic seizure disorders, raising much needed awareness, and being an integral part of the seizure disorders community both in New Jersey and New York.  Read all about the activities NEREG and their patients have been a part of this year!

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Support Groups

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Our support groups are back up and running through September 2016 to June 2017!

VIRTUAL SUPPORT GROUPS

Psychogenic non-epileptic seizures (PNES) support group
Third Tuesday of the month until June: From 12-1PM

The group is for patients at our NEREG PNES program diagnosed with PNES who have completed treatment or who are advanced in their current treatment. Unfortunately, the group is not open to anyone who has not gone through our treatment program because the demand would be too great for our conference call. The group meets to touch base, to go over current problems that may have arisen for group members associated to PNES, for general support and comradery, and to continue to be part of the PNES community.


Joining a group is easy!
Benefits:
• All 60-minute sessions are held through GoToMeeting® 
• Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.)
• All groups are led by a facilitator who is knowledgeable about psychogenic non-epileptic seizures. 
• Confidential.
• Participation in this facilitated discussion is expected and encouraged. You are not on camera, so come in your PJs.
• FREE 

CONTACT INFORMATION

If you are a NEREG patient, have epilepsy and would be interested in a similar group, please contact Lmyers@epilepsygroup.com. In the past, we tried to establish an on-line group like this for our patients with epilepsy but there was limited attendance-but who is to say that we can't try again and with better results?

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Epilepsy on the Move: Stay Tuned for upcoming epilepsy and seizure disorder events and news in 2017
Epilepsy on the Move: Stay Tuned for upcoming epilepsy and seizure disorder events and news in 2017

Stay tuned because there are a ton of epilepsy and seizure disorder events and activities coming up in 2017 including the upcoming International Epilepsy Day in February, our NYC bike-a-thon and Dr. Eric Segal's lecture at the Sturge Weber Conference. 

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Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of seventeen board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.

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bullets 20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
bullets 333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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