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Newsletter N° 60 | March, 2026 |
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Feature article: Disaster Preparedness for Individuals with Epilepsy and Seizures
Disasters—whether natural events like hurricanes and earthquakes or man-made crises—can occur quite suddenly and turn everyday life upside down. For people living with epilepsy or who experience seizures, these situations bring added challenges that require thoughtful preparation.
This guide provides practical steps to help individuals with epilepsy, along with their caregivers and loved ones, get ready for emergencies, know how to respond, and recover afterward as well as possible.
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| Safety in Epilepsy: Protecting Your Mouth During Seizures |
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When we think of seizure safety, we tend to focus on preventing falls, cushioning the head, and ensuring a clear airway. Yet one common injury is frequently overlooked: oral trauma. Bites to the tongue, lips, or inner cheeks can cause significant pain, can be slow to recover, and affect everyday activities like eating and speaking.
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| Epilepsy and Seizure Star: Linda McClure |
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Our March issue’s Epilepsy and Seizure star is none other than author, Linda McClure. A remarkable wordsmith and advocate for those living with epilepsy and psychogenic nonepileptic seizures, she has published her experiences and reflections in two books (and a third one is in the making!).
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| Our epilepsy and seizures community of patients, family, friends and doctors have been on the move this spring! |
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Our epilepsy and seizure community of patients, family, friends and doctors have been on the move this spring! Our doctors have been out in the community educating the general public and school nurses, and attended the American Epilepsy Society Annual meeting in Atlanta, Georgia. Also, Dr. Lorna Myers, presented in two international conferences and the epilepsy community came together on September for our virtual epilepsy book club, on October 19 to WALK FOR THE ONE and in November raising awareness all monthlong for epilepsy.
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| New Volunteer Opportunity |
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This wonderful volunteer opportunity is coming from Nicole Stawicki, MS RDN CNSC
Ketogenic Dietitian at the Northeast Regional Epilepsy Group. She volunteers with a program called Team Hippogriffin whose mission is to support athletes (age 14 and up) with physical, intellectual, and/or neurodevelopmental disabilities who would not be able to walk/run a race without a guide. Volunteers meet monthly and then celebrate by participating in a 5K trail race the weekend after Thanksgiving at South Mountain Reservation in West Orange.
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Support Groups
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VIRTUAL SUPPORT GROUPS
PSYCHOGENIC NON-EPILEPTIC SEIZURES (PNES) SUPPORT GROUP
Second Wednesday of the month from September until June 2026: From 12-1 PM
The group is only for NEREG patients who have completed their treatment at the NEREG PNES Program. We wish we could fit everyone in, but the group is already pretty large as it is. To register or obtain more information: dramyers@yahoo.com
EPILEPSY ADULT SUPPORT GROUP (for patients and loved ones)
Third Wednesday of the month, from September until June 2026
To inquire about it or to join, email dramyers@yahoo.com. The group is for persons with epilepsy (or loved ones) who wish to connect virtually with others also living with epilepsy. The group meets to touch base, to go over challenges that may have arisen for group members associated with epilepsy, for sharing of resources, and for general support and camaraderie.
Joining a group is easy!
Benefits:
• All 60-minute sessions are held through GoToMeeting®
• Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.)
• All groups are led by a facilitator who is knowledgeable about psychogenic non-epileptic seizures.
• Confidential.
• Participation in this facilitated discussion is expected and encouraged. You can have your camera on or off-your choice.
• FREE
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March 24: Dr. Lorna Myers will present on psychogenic nonepileptic seizures (PNES) at Epilepsy Alliance America Member Organization Meeting in New Brunswick, NJ
August 6-8: Nonepileptic Seizures—An Underserved Group: Bridging Science and Practice was accepted by Division 22 - Rehabilitation Psychology for presentation at APA 2026 in Washington, DC. Dr. Lorna Myers, Becky Tilahun, Julia Doss, Marcela Bonafina and Silvia Hammer will be in attendance presenting on this important topic.
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Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of twenty board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.
Launched in 2003, Mid-Atlantic Epilepsy and Sleep Center (MAESC) is a practice located in Bethesda, Maryland that offers neurological services and comprehensive care to children and adults. MAESC consists of six board-certified neurologists who treat epilepsy, multiple sclerosis and other neurological illnesses.
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20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
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333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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