Northeast Regional Epilepsy Group PNES - PsychologicalNon Epileptic Seizures
Quick Links Newsletter N° 36 | December, 2019

1- Feature Article: Driving and epilepsy: both sides of the argument
2- Seizure star: Brenna McNamara: Epilepsy warrior and filmographer
3- This issue’s highlight product: Epilepsy Wreath
4- Epilepsy Survey results: Have you made sure your home is as safe as it can be for someone living with seizures?
5- Our epilepsy and seizures community of patients, family, friends and doctors has been busy!
6- Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in 2020

 

Feature Article: Driving and epilepsy: both sides of the argument

In many parts of the US, driving is essential to get anywhere and to be able to participate in the most mundane everyday activities (e.g. shopping for food, going to work, getting the kids to school, going out to the movies, etc.). Not being allowed to drive can affect quality of life, lower self-esteem, affect someone's feelings of independence, and increase social isolation.  

However, if a patient with uncontrolled epilepsy drives a motor vehicle, there is a risk for accidents, which could end up damaging property and even injuring or killing the driver and others.  In this article we will go over the two sides of this argument and offer some resources.

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Seizure star: Brenna McNamara: Epilepsy warrior and filmographer
Seizure star: Brenna McNamara: Epilepsy warrior and filmographer

Brenna McNamara is a young adult with epilepsy who made a video for her Girl Scouts gold award about epilepsy. It is an amazing piece of work that very clearly explains epilepsy and fights stigma by showing the viewer real-life young adults living with epilepsy. Must watch! 

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This issue’s highlight product: Epilepsy Wreath
This issue’s highlight product: Epilepsy Wreath

Epilepsy Awareness Wreath: For this quarterly edition, we are highlighting a lovely epilepsy awareness item which comes just in time for the holiday season.  Read the brief interview with the creator of this epilepsy awareness wreath.

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Epilepsy Survey results: Have you made sure your home is as safe as it can be for someone living with seizures?
Epilepsy Survey results: Have you made sure your home is as safe as it can be for someone living with seizures?

Epilepsy Survey results: For this issue, we wanted to check in with you to see whether you have seizure-proofed your house.  The survey question was: Have you made sure your home is as safe as it can be for someone living with seizures? Yes / No

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Our epilepsy and seizures community of patients, family, friends and doctors has been busy!
Our epilepsy and seizures community of patients, family, friends and doctors has been busy!

Our epilepsy and seizures community of patients, family, friends and doctors has been busy! Our community of doctors, nurses, staff, patients, loved ones and friends have been busy learning about seizures, walking and running for seizures, and publishing research findings.  

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Support Groups

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Our support groups are back up and running through September 2019 to June 2020!

VIRTUAL SUPPORT GROUPS

Psychogenic non-epileptic seizures (PNES) support group
Third Tuesday of the month until June: From 12-1PM

The group is for patients at our NEREG PNES program diagnosed with PNES who have completed treatment or who are advanced in their current treatment. Unfortunately, the group is not open to anyone who has not gone through our treatment program because the demand would be too great for our conference call. The group meets to touch base, to go over current problems that may have arisen for group members associated to PNES, for general support and comradery, and to continue to be part of the PNES community. To register or obtain more information: lmyers@epilepsygroup.com

Joining a group is easy!

Benefits:
• All 60-minute sessions are held through GoToMeeting® 
• Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.)
• All groups are led by a facilitator who is knowledgeable about psychogenic non-epileptic seizures. 
• Confidential.
• Participation in this facilitated discussion is expected and encouraged. You are not on camera, so come in your PJs.
• FREE 

CONTACT INFORMATION

If you are a NEREG patient, have epilepsy and would be interested in a similar group, please contact Lmyers@epilepsygroup.com. In the past, we tried to establish an on-line group like this for our patients with epilepsy but there was limited attendance-but who is to say that we can't try again and with better results?

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Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in 2020
Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in 2020

Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in 2020  

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 iso epilepsy group www.epilepsygroup.com iso epilepsy life links www.nonepilepticseizures.com Follow Us on Facebook

Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of seventeen board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.

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bullets 20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
bullets 333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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