Northeast Regional Epilepsy Group PNES - PsychologicalNon Epileptic Seizures
Quick Links Newsletter N° 37 | March, 2020

1- Feature Article: Treating epilepsy with marijuana: All that has changed in the last few years as explained by Dr. Firas Taha
2- Seizure star: Paul (Paul’s Law)
3- Epilepsy International Day: Done Northeast Regional Epilepsy Group style!
4- Epilepsy Survey results: Have you ever felt discriminated against because you have epilepsy?
5- Our epilepsy and seizures community of patients, family, friends and doctors has been busy!
6- Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in the second half of 2020

 

Feature Article: Treating epilepsy with marijuana: All that has changed in the last few years as explained by Dr. Firas Taha

Dr. Firas Taha was born and raised in New Jersey. He completed his Doctor of Medicine at Ross University School of Medicine in Dominica.  He trained in Pediatrics Residency at Saint Peter's University Hospital in New Brunswick, NJ followed by his Child Neurology Residency at the Mayo Clinic Florida in Jacksonville, FL. Subsequently he received specialized EEG and epilepsy training at New York University during his Clinical Neurophysiology Fellowship.  He is Board Certified in Clinical Neurophysiology and Neurology with Special Qualification in Child Neurology.  Dr. Taha is a certified marijuana prescriber in the State of New Jersey where he prescribes medical marijuana for patients with refractory epilepsy.  His research interests include childhood epilepsy syndromes, psychogenic non-epileptic spells in children and intractable epilepsy.  He sees patients in Jersey City and Hackensack, New Jersey.  

Read the article » SHARE | Twitter Facebook
 
Seizure star: Paul (Paul’s Law)
Seizure star: Paul (Paul’s Law)

Paul is a 13-year-old New Jersey boy who has been living with epilepsy over the past year.  We are recognizing him as our Epilepsy Star because he worked tirelessly alongside his mom, Colleen, to pass S4141, also known as "Paul's Law" and by doing this, children with epilepsy in the state of New Jersey are now safer.  His mom, Colleen, was kind enough to answer some of our questions.
* Photo: Paul, Governor Murphy and Colleen.

view moreview more SHARE | Twitter Facebook
separador
Epilepsy International Day: Done Northeast Regional Epilepsy Group style!
Epilepsy International Day: Done Northeast Regional Epilepsy Group style!

International Epilepsy Day done Northeast Regional Epilepsy Group style! This year our offices in Morristown, NJ and Manhattan and White Plains, NY participated in International Epilepsy Day by decorating the offices in honor of it.  

view moreview more SHARE | Twitter Facebook
separador
Epilepsy Survey results: Have you ever felt discriminated against because you have epilepsy?
Epilepsy Survey results: Have you ever felt discriminated against because you have epilepsy?

For this issue, we asked an important question: have you ever felt discriminated against because you have epilepsy or seizures?  Discrimination and stigma associated to epilepsy have unfortunately existed for centuries.  These can have major effects on a person's self-esteem, mood and quality of life.  Although there has been tremendous work done to raise the public's understanding of epilepsy, it is important to check how we are doing.  

view moreview more SHARE | Twitter Facebook
separador
Our epilepsy and seizures community of patients, family, friends and doctors has been busy!
Our epilepsy and seizures community of patients, family, friends and doctors has been busy!

Our epilepsy and seizures community of patients, family, friends and doctors has been busy! Our doctors and nurses presented an impressive amount of novel research at the American Epilepsy Society meeting held in Baltimore in December 2019, published research findings in peer-reviewed journals, and of course, participated in the International Epilepsy Day.      

view moreview more SHARE | Twitter Facebook
separador
Top

Support Groups

subrayado

Our support groups are back up and running through September 2019 to June 2020!

VIRTUAL SUPPORT GROUPS

Psychogenic non-epileptic seizures (PNES) support group
Third Tuesday of the month until June: From 12-1PM

The group is for patients at our NEREG PNES program diagnosed with PNES who have completed treatment or who are advanced in their current treatment. Unfortunately, the group is not open to anyone who has not gone through our treatment program because the demand would be too great for our conference call. The group meets to touch base, to go over current problems that may have arisen for group members associated to PNES, for general support and comradery, and to continue to be part of the PNES community. To register or obtain more information: lmyers@epilepsygroup.com

Joining a group is easy!

Benefits:
• All 60-minute sessions are held through GoToMeeting® 
• Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.)
• All groups are led by a facilitator who is knowledgeable about psychogenic non-epileptic seizures. 
• Confidential.
• Participation in this facilitated discussion is expected and encouraged. You are not on camera, so come in your PJs.
• FREE 

CONTACT INFORMATION

If you are a NEREG patient, have epilepsy and would be interested in a similar group, please contact Lmyers@epilepsygroup.com. In the past, we tried to establish an on-line group like this for our patients with epilepsy but there was limited attendance-but who is to say that we can't try again and with better results?

bottom

top
Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in the second half of 2020
Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in the second half of 2020

Stay tuned for upcoming epilepsy and seizure disorder events and news in mid-2020 because there are several activities coming up that you may want to take note of.   

view moreview more SHARE | Twitter Facebook
bottom

 iso epilepsy group www.epilepsygroup.com iso epilepsy life links www.nonepilepticseizures.com Follow Us on Facebook

Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of seventeen board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.

degrade
bullets 20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
bullets 333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
Click here to remove from this mailing
Having trouble viewing this email? Click here