Northeast Regional Epilepsy Group PNES - PsychologicalNon Epileptic Seizures
Quick Links Newsletter N° 42 | June, 2021

1- What do we know about COVID-19 vaccines and epilepsy? Feature Article
2- Epilepsy and Seizure star: June's Star is Alyssa Cerchio, an amazing young trailblazer in the epilepsy community!
3- Safety in epilepsy: How to enjoy summer safely by Dr. Olgica Laban-Grant
4- Epilepsy Survey results: Do you have a Seizure Response Plan for school or work?
5- Our epilepsy and seizures community of patients, family, friends and doctors has been busy!
6- Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in the second half of 2021!

 

What do we know about COVID-19 vaccines and epilepsy? Feature Article

As a person living with epilepsy, should I get my COVID-19 vaccine?

If we can say anything for sure about COVID-19 is that there is still a lot that we do not know. Making matters worse, at times experts have communicated confusing and contradictory information to the public. One of the clearest examples of these confounding messages can be found in the advice provided regarding mask wearing.  In March of 2020, experts on news outlets were saying "do not wear a mask," just a month or two later, all experts were saying: "definitely wear a mask," earlier this year, the CDC started recommending "double masking," but not too long ago, Dr. Rochelle Walensky of the CDC announced that fully vaccinated individuals need not wear a mask (with some exceptions).

It's enough to make your head spin! 

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Epilepsy and Seizure star: June's Star is Alyssa Cerchio, an amazing young trailblazer in the epilepsy community!
Epilepsy and Seizure star: June's Star is Alyssa Cerchio, an amazing young trailblazer in the epilepsy community!

Our June 2021 Epilepsy Star is Alyssa Cerchio, an amazing young person who has been blazing trails in epilepsy awareness nationally and locally!  Please read on to learn all about her activities that support the epilepsy community and maybe even get some ideas on how to become an epilepsy advocate yourself. 

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Safety in epilepsy: How to enjoy summer safely by Dr. Olgica Laban-Grant
Safety in epilepsy: How to enjoy summer safely by Dr. Olgica Laban-Grant

For June's issue, we invite you to revisit an "oldie but goodie" article written up by Dr. Olgica Laban-Grant on Safety with epilepsy in the summer.  Summer can be both exciting and relaxing, time for much needed rest and unplugging, but it is important to enjoy summer safely.  Please visit this article with suggestions for a safe summer.

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Epilepsy Survey results: Do you have a Seizure Response Plan for school or work?
Epilepsy Survey results: Do you have a Seizure Response Plan for school or work?

For our June issue, we asked our website (www.epilepsygroup.com) visitors whether they have a seizure response plan for school or work.  We were a bit surprised when we saw that none of the respondents had a seizure response plan.  Read on to learn about a seizure response plan and why it is important to have one.

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Our epilepsy and seizures community of patients, family, friends and doctors has been busy!
Our epilepsy and seizures community of patients, family, friends and doctors has been busy!

Our community of patients, relatives, friends and doctors has been busy! Although Covid-19 has been very much present, our staff continued to put their best efforts forward to keep life moving towards normalcy.  Our doctors have been busy educating the world about epilepsy in children, the neuropsychology of epilepsy and about medical marijuana for children diagnosed with epilepsy.

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Support Groups

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VIRTUAL SUPPORT GROUPS

PSYCHOGENIC NON-EPILEPTIC SEIZURES (PNES) SUPPORT GROUP

Third Wednesday of the month from 1PM to 2PM

The group is for patients at our NEREG PNES program diagnosed with PNES who have completed treatment or who are advanced in their current treatment. Unfortunately, the group is not open to anyone who has not gone through our treatment program because the demand would be too great for our conference call. The group meets to touch base, to go over current problems that may have arisen for group members associated to PNES, for general support and comradery, and to continue to be part of the PNES community. To register or obtain more information: lmyers@epilepsygroup.com

EPILEPSY SUPPORT GROUP

Third Wednesday of the month from 12PM to 1PM

The group is for persons with epilepsy who wish to connect virtually with others also living with epilepsy. The group meets to touch base, to go over challenges that may have arisen for group members associated to epilepsy, for general support and camaraderie. To register or obtain more information: lmyers@epilepsygroup.com


Joining a group is easy!

Benefits:
• All 60-minute sessions are held through GoToMeeting® 
• Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.)
• All groups are led by a facilitator who is knowledgeable about psychogenic non-epileptic seizures. 
• Confidential.
• Participation in this facilitated discussion is expected and encouraged. You can have your camera on or off-your choice.
• FREE 

CONTACT INFORMATION

If you are a NEREG patient, have epilepsy and would be interested in a similar group, please contact lmyers@epilepsygroup.com. In the past, we tried to establish an on-line group like this for our patients with epilepsy but there was limited attendance-but who is to say that we can't try again and with better results?

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Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in the second half of 2021!
Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in the second half of 2021!

On July 18, Drs. Robert Trobliger and Lorna Myers will be presenting (virtually) along with their Czech Republic and Slovakian colleagues at the International Conference of Psychology (ICP). The ICP is organized every four years and is one of the largest international psychological events.  This year, the 32nd ICP will take place in the wonderful city of Prague, the capital of the Czech Republic (although our doctors will be presenting from afar through an online platform.

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 iso epilepsy group www.epilepsygroup.com iso epilepsy life links www.nonepilepticseizures.com Follow Us on Facebook

Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of seventeen board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.

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Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
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White Plains, NY 10604
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