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Newsletter N° 43 | September, 2021 |
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| Seizure Star: Monica Park, Executive Director FND Hope USA |
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Monica Park is the new Executive Director of FND Hope USA, a non-for-profit that represents and supports persons living with functional neurological disorders (FND) including psychogenic non-epileptic seizures (also known as functional seizures). The cause of FND is not well understood. It can be triggered by neurological issues (e.g., head injury), other forms of physical stress or psychological stress and trauma. Seizures can be one symptom in FND but there can be others such as paralysis, tingling, difficulties speaking or swallowing, etc.
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| Spreading epilepsy awareness through stickers! |
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Epilepsy awareness comes in all forms. One way is by spreading the word through stickers. Studiorosee found on Etsy.com offers a variety of epilepsy awareness stickers. This cause is personal since her spouse has been her inspiration for the many beautiful epilepsy-themed stickers she creates.
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| Our epilepsy and seizures community of patients, family, friends and doctors has been busy! |
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We have certainly been busy during 2021 including giving webinars and participating in producing an important consensus statement on managing Sturge Weber Syndrome. In addition, just a month ago, NEREG welcomed our newest pediatric neurologist and epileptologist (Dr. Jose Serruya) to our White Plains, NY office. Click below to read all about these accomplishments.
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Support Groups
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VIRTUAL SUPPORT GROUPS
PSYCHOGENIC NON-EPILEPTIC SEIZURES (PNES) SUPPORT GROUP
Third Wednesday of the month from 1PM to 2PM
The group is for patients at our NEREG PNES program diagnosed with PNES who have completed treatment or who are advanced in their current treatment. Unfortunately, the group is not open to anyone who has not gone through our treatment program because the demand would be too great for our conference call. The group meets to touch base, to go over current problems that may have arisen for group members associated to PNES, for general support and comradery, and to continue to be part of the PNES community. To register or obtain more information: lmyers@epilepsygroup.com
EPILEPSY SUPPORT GROUP
Third Wednesday of the month from 12PM to 1PM
The group is for persons with epilepsy who wish to connect virtually with others also living with epilepsy. The group meets to touch base, to go over challenges that may have arisen for group members associated to epilepsy, for general support and camaraderie. To register or obtain more information: lmyers@epilepsygroup.com
Joining a group is easy!
Benefits:
• All 60-minute sessions are held through GoToMeeting®
• Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.)
• All groups are led by a facilitator who is knowledgeable about psychogenic non-epileptic seizures.
• Confidential.
• Participation in this facilitated discussion is expected and encouraged. You can have your camera on or off-your choice.
• FREE
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There are plenty of upcoming activities that you may want to jot down and keep in mind over the next few months.
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Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of twenty board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.
Launched in 2003, Mid-Atlantic Epilepsy and Sleep Center (MAESC) is a practice located in Bethesda, Maryland that offers neurological services and comprehensive care to children and adults. MAESC consists of six board-certified neurologists who treat epilepsy, multiple sclerosis and other neurological illnesses.
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20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
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333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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