Northeast Regional Epilepsy Group Epilepsy Life Links
Quick Links Newsletter N° 32 | December, 2018

1- Northeast Regional Epilepsy Group and Atlantic Health System bring the Rosa System to persons living with epilepsy in the tri-state area.
2- Seizure stars: John and Angel Dougherty fighting for psychogenic non-epileptic seizures awareness
3- Book recommendation: Guide on Epilepsy in plain Spanish: Qué necesitas saber si la epilepsia ha tocado tu vida
4- In our December issue, we are featuring this product: the Vagus Nerve Stimulator (VNS) Bracelet
5- Epilepsy Survey results: Test your knowledge by responding to the following question: What do you use to alert others about your epilepsy (if you use more than one method, choose your favorite).
6- Our epilepsy and seizures community of patients, family, friends and doctors has been busy!
7- Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in 2018

 

Northeast Regional Epilepsy Group and Atlantic Health System bring the Rosa System to persons living with epilepsy in the tri-state area.

Today, we sat down with epileptologist, Dr. Jeffrey Politsky, Associate Director and Co-Director of Research of the Northeast Regional Epilepsy Group, Medical Director, MEG & Functional Brain Mapping Center, and Atlantic Neuroscience Institute Epilepsy Center.  We asked him about a new and groundbreaking robotic device (ROSA®) that will soon be available to persons with epilepsy at Atlantic Health System hospitals.  

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Seizure stars: John and Angel Dougherty fighting for psychogenic non-epileptic seizures awareness
Seizure stars: John and Angel Dougherty fighting for psychogenic non-epileptic seizures awareness

In this issue Seizure Stars are John and Angel Dougherty. Angel lives with Psychogenic non-epileptic seizures (PNES); she and her husband have worked tirelessly over the past 2 decades to find a cure for her and to raise awareness about PNES.  In fact, they created the first US website on PNES and John also wrote a book that is a guide for patients and loved ones "Lowering the Shield: Overcoming Psychogenic non-epileptic seizures."  For these reasons, Angel and John Dougherty are our Seizure stars this issue.

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Book recommendation: Guide on Epilepsy in plain Spanish: Qué necesitas saber si la epilepsia ha tocado tu vida
Book recommendation: Guide on Epilepsy in plain Spanish: Qué necesitas saber si la epilepsia ha tocado tu vida

This is the Spanish translation of "What you need to know if epilepsy has touched your life: a Guide in plain English" written by Dr. Marcelo Lancman. The book came about because he wanted to provide his patients with a clear and concise explanation of everything they might encounter on their journey with epilepsy (e.g. diagnosis, seizure and epilepsy types, treatment options, special topics, etc.).  

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In our December issue, we are featuring this product: the Vagus Nerve Stimulator (VNS) Bracelet
In our December issue, we are featuring this product: the Vagus Nerve Stimulator (VNS) Bracelet

With every issue, we aim to highlight products that are involved in seizure safety or are somehow related to epilepsy. In our December issue, we are featuring a bracelet that is used by children to keep their VNS magnet handy while still being stylish and playful.  We asked Denise all about her innovative bracelets that she started making for her own children and which has now become a personal business.  

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Epilepsy Survey results: Test your knowledge by responding to the following question: What do you use to alert others about your epilepsy (if you use more than one method, choose your favorite).
Epilepsy Survey results: Test your knowledge by responding to the following question: What do you use to alert others about your epilepsy (if you use more than one method, choose your favorite).

Epilepsy Survey results: Make your voice heard: What do you use to alert others about your epilepsy (if you use more than one method, choose your favorite).

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Our epilepsy and seizures community of patients, family, friends and doctors has been busy!
Our epilepsy and seizures community of patients, family, friends and doctors has been busy!

Throughout fall, our doctors, office managers, secretaries and nurses have all been extra-busy raising epilepsy and seizure awareness through 1) organizing the upcoming annual Northeast Regional Epilepsy Group conference, 2) attending professional meetings and giving lectures, 3) receiving awards, and 4) going on Epilepsy Walks that benefited the Epilepsy Services of NJ.

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Support Groups

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Our support groups are back up and running through September 2018 to June 2019!

VIRTUAL SUPPORT GROUPS

Psychogenic non-epileptic seizures (PNES) support group
Third Tuesday of the month until June: From 12-1PM

The group is for patients at our NEREG PNES program diagnosed with PNES who have completed treatment or who are advanced in their current treatment. Unfortunately, the group is not open to anyone who has not gone through our treatment program because the demand would be too great for our conference call. The group meets to touch base, to go over current problems that may have arisen for group members associated to PNES, for general support and comradery, and to continue to be part of the PNES community. To register or obtain more information: lmyers@epilepsygroup.com

Joining a group is easy!

Benefits:
• All 60-minute sessions are held through GoToMeeting® 
• Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.)
• All groups are led by a facilitator who is knowledgeable about psychogenic non-epileptic seizures. 
• Confidential.
• Participation in this facilitated discussion is expected and encouraged. You are not on camera, so come in your PJs.
• FREE 

CONTACT INFORMATION

If you are a NEREG patient, have epilepsy and would be interested in a similar group, please contact Lmyers@epilepsygroup.com. In the past, we tried to establish an on-line group like this for our patients with epilepsy but there was limited attendance-but who is to say that we can't try again and with better results?

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Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in 2018
Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in 2018

We strive to keep moving all year long in the march against epilepsy and seizures and this upcoming year is no different with two major events that are happening early in 2019. One is of course, International Epilepsy Day and the other is the National Epilepsy Walk that will take place in Washington, DC.  Click on this link to read more about these.  

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 iso epilepsy group www.epilepsygroup.com iso epilepsy life links www.epilepsylifelinks.com Follow Us on Facebook

Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of seventeen board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.

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bullets 20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
bullets 333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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