Northeast Regional Epilepsy Group Epilepsy Life Links
Quick Links Newsletter N° 10 | June, 2013

1- How is an electroencephalogram (EEG) used in epilepsy? What is the difference between ambulatory, Video-EEG and routine EEGs? Dr. Christos Lambrakis
2- Team Northeast Regional Epilepsy Group raises the most in donations for the American Epilepsy Society in Washington, DC on April 20, 2013 and wins the AES Trophy!
3- Shining Epilepsy Star - Jennie Stormes
4- Epilepsy Research Program in New York and New Jersey
5- Is a patient diagnosed with epilepsy after having a single seizure? - Epilepsy Survey
6- The Northeast Regional Epilepsy Group helped a total of 13 local families travel to Washington, DC to join the National Epilepsy Walk
7- Epilepsy Activities 2013: Epilepsy education, Team Northeast Regional Epilepsy Group in New Jersey, New York, Connecticut
8- Our epilepsy specialists in New York and New Jersey are actively working
9- Stay tuned for upcoming epilepsy events in New York and New Jersey 2013

 

How is an electroencephalogram (EEG) used in epilepsy? What is the difference between ambulatory, Video-EEG and routine EEGs? Dr. Christos Lambrakis

In this issue we sat down with Dr. Christos Lambrakis, epileptologist and Associate Director of the Northeast Regional Epilepsy Group in New York.  He treats patients with epilepsy and seizures at several of our New York hospital units.  We asked him all about Electroencephalograms (EEGs) and how they are used for epilepsy diagnosis.

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Team Northeast Regional Epilepsy Group raises the most in donations for the American Epilepsy Society in Washington, DC on April 20, 2013 and wins the AES Trophy!
Team Northeast Regional Epilepsy Group raises the most in donations for the American Epilepsy Society in Washington, DC on April 20, 2013 and wins the AES Trophy!

On April 20, 2013 the Epilepsy Foundation of America held its 7th National Walk for Epilepsy in Washington, DC. Fourteen teams walked to raise funds for the American Epilepsy Society (AES). Team Northeast Regional Epilepsy Group (NEREG) walked in this category and raised over $25,000 for AES. They are now the proud recipients of the 2013 AES Cup for their fundraising achievement.

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Shining Epilepsy Star - Jennie Stormes
Shining Epilepsy Star - Jennie Stormes

Jennie Stormes is this issue’s shining epilepsy star for all she does to advance awareness and knowledge about Dravet's Syndrome (an epilepsy syndrome) and epilepsy in general.  Her fight against epilepsy is very personal; she was "recruited" when her son was diagnosed with Dravet's Syndrome.  She is tireless and always willing to speak to others about her experience with epilepsy and seizures.  She is a driven epilepsy advocate who fundraises, walks for epilepsy, educates others through her website, tweets, and other social media. She works with many of the epilepsy foundations and is now working with Dr. Eric Segal putting together a series of webinars for parents of children with epilepsy that will take place in the second half of 2013. Seen in this picture Jennie, Jax, Sidnee, and Kipper

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Epilepsy Research Program in New York and New Jersey
Epilepsy Research Program in New York and New Jersey

The Clinical Research Program is dedicated to improving our patients' lives by  finding new ways to treat seizures and epilepsy.  The scope of the research is wide and includes all types of seizures and epilepsy from babies to the elderly.  Areas of particular interest include women's issues in epilepsy, tumor-related epilepsy, new tools to localize a seizure focus for surgery such as magneto-encephalography (MEG), epileptic seizures which occur in the intensive care unit, new medications for children and adults with epilepsy, laser therapy for epilepsy, and neuropsychological factors of epilepsy and psychogenic non epileptic seizures.   

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Is a patient diagnosed with epilepsy after having a single seizure? - Epilepsy Survey
Is a patient diagnosed with epilepsy after having a single seizure? - Epilepsy Survey

During this quarter, we asked website visitors to tell us how much they know about epilepsy by asking when is a diagnosis of epilepsy given - IS A DIAGNOSIS OF EPILEPSY GIVEN AFTER A SINGLE SEIZURE?

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The Northeast Regional Epilepsy Group helped a total of 13 local families travel to Washington, DC to join the National Epilepsy Walk
The Northeast Regional Epilepsy Group helped a total of 13 local families travel to Washington, DC to join the National Epilepsy Walk

Many patients and family members have a strong desire to be a part of the Washington, DC walk that is held annually but the cost of travel, hotel, restaurants, and more that this requires can be too much.  The Northeast Regional Epilepsy Group wanted to make a difference in the lives of some of these families by giving them the chance to make this unforgettable trip. 

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Epilepsy Activities 2013: Epilepsy education, Team Northeast Regional Epilepsy Group in New Jersey, New York, Connecticut
Epilepsy Activities 2013: Epilepsy education, Team Northeast Regional Epilepsy Group in New Jersey, New York, Connecticut

The Northeast Regional Epilepsy Group teams marched locally this year in support of the Epilepsy Foundation of New Jersey, Northeastern NY, and Connecticut and raised a grnad total of $8145 to fund local epilepsy resources and research.

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Our epilepsy specialists in New York and New Jersey are actively working
Our epilepsy specialists in New York and New Jersey are actively working

Our epilepsy specialists have been busy in 2013 giving webinars on epilepsy in women, free half-day conferences on epilepsy medications, epilepsy surgery and memory retraining, publishing in peer-reviewed journals and giving professional talks on Lennox Gastaut and neuropsychology. 

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Support Groups

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Our support groups will be running through June 2013!

ADULTS WITH EPILEPSY & THEIR CAREGIVERS

2nd Tuesday of every month – 6:30 pm
Wallkill Medical Arts Building
390 Crystal Run Road – Suite 102
Middletown, NY

1st Thursday of every month - 6:30 pm
White Plains Hospital Medical Library
Davis Avenue & East Post Road
White Plains, NY 10601

3rd Wednesday of every month - 6:30 pm
Hackensack University Medical Center
20 Prospect Avenue - Suite 800
Main Conference Room
Hackensack, NJ 07601

1st Tuesday of every month - 6:00 pm
Jersey City Medical Center
355 Grand Street
Conference Room #5
Jersey City, NJ 07302

GRUPOS DE APOYO EN ESPAÑOL

2do jueves de cada mes - 6:30 pm
Salon de Conferencia
20 Prospect Ave.
Suite 800
Hackensack, NJ 07601

CONTACT INFORMATION
Lorna Myers, Ph.D.
212-661-7460, option 5
lmyers@epilepsygroup.com

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Stay tuned for upcoming epilepsy events in New York and New Jersey 2013
Stay tuned for upcoming epilepsy events in New York and New Jersey 2013

Epilepsy activities galore are coming up which include 2 epilepsy conferences for patients and loved ones, and 4 webinars on epilepsy and autism, epilepsy surgery, epilepsy in the school, and more.  Our novel wellness in epilepsy program is ongoing and receiving rave reviews.  Check them out and see what you would like to join.  All programs are completely free. 

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 iso epilepsy group www.epilepsygroup.com iso epilepsy life links www.epilepsylifelinks.com Follow Us on Facebook

Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of seventeen board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.

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bullets 20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
bullets 333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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