Northeast Regional Epilepsy Group Epilepsy Life Links
Quick Links Newsletter N° 16 | December, 2014

1- What to do when an epilepsy or seizure emergency occurs? Feature Article
2- Epilepsy Star: Leigh Schommer
3- Epilepsy Survey Results: Are sleep deprivation, alcohol, and emotional stress triggers for seizures?
4- Keeping safe with epilepsy and seizures: Robert Moss Seizure Tracker Founder
5- Our epilepsy community has been busy with Walks for epilepsy and seizures, conferences for patients and loved ones, purple knitting, purple pumpkins, and epilepsy webinars
6- The Northeast Regional Epilepsy Group doctors and professional staff attend the Annual American Epilepsy Society (AES) Meeting from December 5-9, 2014
7- Our Epilepsy and Seizure Experts have been busy
8- Epilepsy on the move: Stay tuned

 

What to do when an epilepsy or seizure emergency occurs? Feature Article

Epilepsy is a condition that is characterized by recurrent seizures. For the most part, seizures can be managed well with anti-epileptic drugs (AEDs). However, it is important to think about and be aware of critical conditions or emergencies that may be associated with seizures. For this issue of the Northeast Regional Epilepsy Group (NEREG) newsletter, Sloka Iyengar, PhD- clinical researcher at NEREG based in Overlook Hospital interviewed Dr. Olgica Laban - Grant– Associate Director of Northeast Regional Epilepsy Group and Board certified epileptologist (American Board of Psychiatry & Neurology, American Board of Psychiatry and Neurology with special qualifications in Neurophysiology, American Board of Clinical Neurophysiology with added competency in Epilepsy Monitoring). Dr. Olgica Laban-Grant’s primary research interest is in the area of epilepsy in women.

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Epilepsy Star: Leigh Schommer
Epilepsy Star: Leigh Schommer

Leigh Schommer  is this issue’s shining epilepsy star for all she does and has done to advance awareness and knowledge about epilepsy in general and more specifically in Mexico where epilepsy is still very much in the shadows.  Her fight against epilepsy is very personal because she herself has epilepsy.  She has dedicated her young life to helping others with epilepsy in many ways and has tons of plans for the future. Read more inside. 

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Epilepsy Survey Results: Are sleep deprivation, alcohol, and emotional stress triggers for seizures?
Epilepsy Survey Results: Are sleep deprivation, alcohol, and emotional stress triggers for seizures?

Every three months, we change our epilepsy survey question on our homepage.  The question is meant to allow visitors to test themselves on how much they know about epilepsy and seizures and to learn when they cast their vote by reading the answer.  This time around we had 51 voters and their responses showed that most of our visitors know a lot about seizure triggers.  

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Keeping safe with epilepsy and seizures: Robert Moss Seizure Tracker Founder
Keeping safe with epilepsy and seizures:  Robert Moss Seizure Tracker Founder

In every issue of the Northeast Regional Epilepsy Group (NEREG) newsletter, we present a ‘Safety Feature’ that is meant to educate and inform about safety measures for the lives of people with epilepsy. This issue, we focus on revolutionary, free software called Seizure Tracker, an endeavor headed by Robert Moss. Seizure Tracker is an innovative tool that combines on one platform seizure history, details about anti-epileptic drug (AED) therapy, changes in AED dosages, doctor appointments and other daily notes.  

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Our epilepsy community has been busy with Walks for epilepsy and seizures, conferences for patients and loved ones, purple knitting, purple pumpkins, and epilepsy webinars
Our epilepsy community has been busy with Walks for epilepsy and seizures, conferences for patients and loved ones, purple knitting, purple pumpkins, and epilepsy webinars

In the past 3 months, our community of patients and epilepsy doctors at the Northeast Regional Epilepsy Group have been incredibly busy with epilepsy conferences, epilepsy runs and walks, wellness programs, purple pumpkins, and more. 

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The Northeast Regional Epilepsy Group doctors and professional staff attend the Annual American Epilepsy Society (AES) Meeting from December 5-9, 2014
The Northeast Regional Epilepsy Group doctors and professional staff attend the Annual American Epilepsy Society (AES) Meeting from December 5-9, 2014

Over 5,000 of the world’s leading epilepsy professionals come together at AES every year to learn about the most recent clinical and basic research, technology and treatment developments and to exchange new ideas. This year, the meeting is being held in Seattle, WA.

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Our Epilepsy and Seizure Experts have been busy
Our Epilepsy and Seizure Experts have been busy

Over the past few months, our epilepsy specialists including epileptologists, psychologists, and social workers have been working hard on educating themselves earning epilepsy subspecialty board certifications and PTSD therapy certifications.  Each one of these academic achievements are very important because they spell improved treatment for our patients.

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Support Groups

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Our support groups are back up and running through September 2014 to June 2015!

ADULTS WITH EPILEPSY & THEIR CAREGIVERS

1st Thursday of every month - 6:30 pm
White Plains Hospital Centennial Room
Davis Avenue & East Post Road
White Plains, NY 10601

 

VIRTUAL SUPPORT GROUP

Third Wednesday of the month From January to June: From 6:00pm-7:00pm

The NEREG Virtual Support groups provide a forum that facilitates and promotes the sharing of common interests, information, and experiences within the epilepsy community. These online groups allow you to participate in support activities when you are unable to attend a local support meeting in person; and are managed by qualified facilitators knowledgeable on Epilepsy-related topics. During these sessions, you have the opportunity to speak with other participants, seek advice, make friends, discover new ideas, share your experiences – good and bad, and help support others managing Epilepsy. 

Joining a group is easy!

Benefits:
• All 60-minute sessions are held through GoToMeeting®
• Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.)
• All groups are led by an experienced facilitator who is knowledgeable about Epilepsy.
• Confidential.
• Participation in this facilitated discussion is expected and encouraged. You are not on camera, so come in your PJs.
• FREE 


CONTACT INFORMATION

Urmi Vaidya
201-343-6676
uvmlcsw@gmail.com

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Epilepsy on the move: Stay tuned
Epilepsy on the move: Stay tuned

1) The date for the next National Epilepsy and Seizures Walk has been announced: Saturday, April 11, 2015 in Washington, DC. Our team NEREG will be captained by Shelby Santucci and will be marching raising funds for the American Epilepsy Society. 

2) Exciting changes are coming to our Epilepsy Support groups: VIRTUAL SUPPORT GROUP

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 iso epilepsy group www.epilepsygroup.com iso epilepsy life links www.epilepsylifelinks.com Follow Us on Facebook

Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of seventeen board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.

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bullets 20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
bullets 333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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