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Newsletter N° 57 | March, 2025 |
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Feature article: Headaches and Migraines and Epilepsy
Headaches and Epilepsy are neurological conditions; each can cause significant discomfort and negatively impact quality of life. At times, there is a connection between these two neurological conditions and the same person may experience both.
Let’s start today’s article by defining a headache and then discussing the different types of headaches that can occur in people who have epilepsy. Headaches are defined as pain or discomfort located not only in the head, but that can also occur in the face, or neck. Headaches and migraines are not the same. Headaches refer to general head pain, while migraines are a specific type of headache characterized by severe, often throbbing pain usually on one side of the head, often accompanied by additional symptoms like nausea, vomiting, sensitivity to light and sound, and sometimes visual disturbances (auras). Regular headaches don’t usually have these other symptoms.
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| Safety in Epilepsy: Automatic shut off irons |
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People with epilepsy (PWEs) are at a higher risk of suffering certain injuries including bumps, cuts, fractures, concussions, and burns. Risks of injury are greater when the seizures the person has are associated with loss of consciousness, are generalized tonic-clonic seizures, or are poorly controlled, among other reasons. Some seemingly innocuous objects at home may pose a danger to someone who is living with epilepsy. One such device is the iron we use to iron our clothes.
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| Epilepsy Star: Marc Palmieri |
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For our March issue, we are excited to feature our Epilepsy Star, Marc Palmieri who is the author of "She Danced with Lightning, My Daughter’s Struggle with Epilepsy and her Boundless Will to Live." This exceptional book was selected as our March 2025 Epilepsy Book Club choice. The book club members had the pleasure of not only reading this fantastic non-fiction novel but will also have the honor of having Marc join us during our meeting on March 21! Marc is an exceptional epilepsy dad who published a book in honor of his daughter a few years back. The book illustrates beautifully the strength Marc’s daughter, Anna, his other daughter, Nora, his wife, Kristen, and Marc exhibited for nearly 12 years as they battled epilepsy yet managed to live and grow despite it all. Please read about Marc who undoubtedly deserves to be the Epilepsy Star of our March 2025 issue!
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Support Groups
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VIRTUAL SUPPORT GROUPS
PSYCHOGENIC NON-EPILEPTIC SEIZURES (PNES) SUPPORT GROUP
Second Wednesday of the month from September until June 2025: From 12-1 PM
The group is only for NEREG patients who have completed their treatment at the NEREG PNES Program. We wish we could fit everyone in, but the group is already pretty large as it is. To register or obtain more information: dramyers@yahoo.com
EPILEPSY ADULT SUPPORT GROUP (for patients and loved ones)
Third Wednesday of the month, from September until June 2025
To inquire about it or to join, email dramyers@yahoo.com. The group is for persons with epilepsy (or loved ones) who wish to connect virtually with others also living with epilepsy. The group meets to touch base, to go over challenges that may have arisen for group members associated with epilepsy, for sharing of resources, and for general support and camaraderie.
Joining a group is easy!
Benefits:
• All 60-minute sessions are held through GoToMeeting®
• Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.)
• All groups are led by a facilitator who is knowledgeable about psychogenic non-epileptic seizures.
• Confidential.
• Participation in this facilitated discussion is expected and encouraged. You can have your camera on or off-your choice.
• FREE
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Stay tuned because in the upcoming months many very cool epilepsy and seizure events are coming up! What sort of things? Well, the National Epilepsy Walk for one, where you and your team can walk for Epilepsy at the National Mall in Washington, DC. Also, the fantastic Purple Day is coming up! Also, our Paint the Pony Purple will be happening in New Jersey and our virtual epilepsy book club will be honored to have author, Marc Palmieri joining us!
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Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of twenty board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.
Launched in 2003, Mid-Atlantic Epilepsy and Sleep Center (MAESC) is a practice located in Bethesda, Maryland that offers neurological services and comprehensive care to children and adults. MAESC consists of six board-certified neurologists who treat epilepsy, multiple sclerosis and other neurological illnesses.
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20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
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333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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