Stay tuned for upcoming epilepsy and seizure disorder events and news in the first quarter of 2025
Stay tuned because in the upcoming months many very cool epilepsy and seizure events are coming up! What sort of things? Well, the National Epilepsy Walk for one, where you and your team can walk for Epilepsy at the National Mall in Washington, DC. Also, the fantastic Purple Day is coming up! Also, our Paint the Pony Purple will be happening in New Jersey and our virtual epilepsy book club will be honored to have author, Marc Palmieri joining us!
March 15: National Epilepsy Walk at the National Mall in Washington, DC
This event is more than just a walk - it's an opportunity to come together as a community with families, friends, and advocates in the heart of our nation's capital. Whether you're directly impacted by epilepsy or simply want to show your support, your participation makes a difference. Together, we can create a world where everyone impacted by epilepsy can thrive. Lace up your shoes, bring your purple, and let’s make strides toward change!
There is no fee to register, however when you raise $100 or more you'll earn this year's official National Epilepsy Walk swag.
https://donate.epilepsy.com/index.cfm?fuseaction=donorDrive.event&eventID=1136
March 21: Epilepsy Book Club
The Epilepsy Book club will be reading "She danced with lightening" by Marc Palmieri this time around.
As part of our Wellness Program, NEREG and MAESC hosts an on-line epilepsy and seizure-themed Book Club every 4 months! Everyone in the group reads the book on their own, then "meets" online to talk about it: impressions, opinions, critiques. Books are selected based on their relevance to epilepsy, such as books that have a fictional or non-fictional character with epilepsy or that is written by a person living with epilepsy. The group will vote on the upcoming books to read.
Synopsis of the book: Eleven-year-old Anna has lived all her life with severe epilepsy. Despite the ravage of thousands of violent seizures and heavy medications, she has thrived at school, athletics, and her greatest passion—dance. As she approaches her twelfth birthday, Anna’s condition takes a dire turn. Her health declines quickly and a new diagnosis is revealed, leaving the family only one excruciating choice. A parent's memoir about the medical mysteries of epilepsy and the personal suffering of raising a child with a deadly health condition, She Danced with Lightning is told from the perspective of Anna's dream-chasing father, who comes to learn from her a strength and courage he never imagined possible.
March 23: 14th Paint the Pony Purple
Where: Asbury Park, NJ
A family friendly concert raising epilepsy awareness (organized by Epilepsy Services of New Jersey)
The Northeast Regional Epilepsy Group is sponsoring this event.
https://www.stoneponyonline.com/events/paint-the-pony-purple-4/
March 26: PURPLE DAY
Many of you have heard about this global awareness raising day where we can all be as creative as possible with the color purple (official color of epilepsy) as long as we are striving to raise awareness and educate others about this serious and important disorder. Check out the The Great Purple Cupcake Project hosted by the Anita Kaufman Foundation: https://purpledayeveryday.org/events/the-great-purple-cupcake-project-for-epilepsy/
Don't forget to send in your pictures of how YOU chose to color March 26 all shades of purple!
September 5: Virtual Epilepsy Book Club
The Epilepsy Book club will be reading a new book that was selected by the book club members.
Please email lmyers@epilepsygroup.com if you are interested in participating.
