Being diagnosed with epilepsy can feel unreal and confusing. The number of questions that need answers quickly are many. Newly diagnosed patients with epilepsy may feel overwhelmed and isolated in the early stages of learning to adjust to all the changes. Patients who have carried the diagnosis of epilepsy for some time may need specific assistance in effectively managing. This is where Epilepsy Life Links comes in.
At NEREG, our experience has taught us that helping our patients to the fullest often requires more than effective medical treatment. Patients with epilepsy have needs that extend beyond physical concerns. Having access to a community that is understanding and supportive and to dedicated epilepsy advocates is necessary to achieve a finer quality of life.
Through NEREG’ s Epilepsy Life Links program, patients connect with others through support groups, social activities, volunteering, classes on epilepsy, and patient-centered resources. The Life Links team provides guidance on how to manage epilepsy in the school and at work and gives out summer camp and college scholarships to children and adults. Our epilepsy advocates travel to schools, police stations, and emergency departments to make sure key figures in our patients’ lives have been trained in seizure recognition and first aid.