Northeast Regional Epilepsy Group Epilepsy Life Links
Quick Links Newsletter N° 4 | December, 2011

1- Feature Article: Epilepsy in Women – Epileptologist, Dr. Olgica Laban-Grant
2- Safety devices in Epilepsy - The Sleep-Safe pillow
3- Shining epilepsy star: Shelby Santucci
4- Survey on Epilepsy Topics: How much do you know about epilepsy and diets?
5- New Epilepsy Program: MEG-state of the art diagnostic device- the only one available in NY, NJ, CT
6- Our patients and NEREG have been busy over the last few months
7- NEREG was recognized for our work to improve the lives of people with epilepsy
8- Stay Tuned - Mark your calendars

 

Feature Article: Epilepsy in Women – Epileptologist, Dr. Olgica Laban-Grant

Dr. Olgica Laban-Grant, epileptologist who has a particularly interest in epilepsy in women sat with us to answer questions about what women who have epilepsy should know. She explained important facts about epilepsy medications in pregnant women, adjustments in epilepsy treatment when trying to not get pregnant and in menopausal women. She also told us about catamenial epilepsy and by what means doctors can better tackle epilepsy of a catamenial type.

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Safety devices in Epilepsy - The Sleep-Safe pillow
Safety devices in Epilepsy - The Sleep-Safe pillow

What can be done to prevent SUDEP? More recently, a growing number of devices and items are being marketed as an added safeguard for patients with seizures and Epilepsy. In theory they are marketed as potentially lowering the occurrence of SUDEP.  As always, we do not endorse these products and have no financial gain associated to them; this is simply meant to be educational.
In this issue, Don Alderton, inventor of the Sleep Safe pillow is featured in our epilepsy safety section. He tells us about the pillow he created almost 20 years ago in an effort to prevent suffocation during nighttime seizures. He started this to help his son.

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Shining epilepsy star: Shelby Santucci
Shining epilepsy star: Shelby Santucci

There are so many bright stars in the epilepsy community. This section shines a spotlight on these epilepsy advocates in recognition of the work they do and in hopes of inspiring others touched by epilepsy to jump in as well into epilepsy advocacy.

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Survey on Epilepsy Topics: How much do you know about epilepsy and diets?
Survey on Epilepsy Topics: How much do you know about epilepsy and diets?

The most recent survey results are in: Can some epilepsy syndromes be treated with diets?
It wasn’t that long ago that this idea seemed farfetched, but go ahead and read what epileptologists and dieticians are now saying.

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New Epilepsy Program: MEG-state of the art diagnostic device- the only one available in NY, NJ, CT
New Epilepsy Program: MEG-state of the art diagnostic device- the only one available in NY, NJ, CT

The Northeast Regional Epilepsy Group’ Comprehensive Epilepsy Center located at Overlook Medical Center has just made available the only clinical Magnetoencephalography (MEG) unit in the region (that includes NJ, NY and CT).

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Our patients and NEREG have been busy over the last few months
Our patients and NEREG have been busy over the last few months

The second half of this year, the Northeast Regional Epilepsy Group has participated in 2 Epilepsy Walks, organized 11 educational conferences for epilepsy patients and their loved ones, presented research at the American Epilepsy Society Annual meeting and several international meetings, taught courses on epilepsy for nurses, and launched a wellness in epilepsy initiative in November in honor of Epilepsy Month.

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NEREG was recognized for our work to improve the lives of people with epilepsy
NEREG was recognized for our work to improve the lives of people with epilepsy

We have been honored as a group to have been recognized by the Epilepsy Foundation of New Jersey and Northeastern New York for our collaboration with them this year.

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Support Groups

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All our support groups are back up and running for the next 10 months!

TEEN SUPPORT GROUPS

1st Thursday of every month - 6:30 pm
Conference Room
20 Prospect Ave.
Suite 800
Hackensack, NJ 07601

ADULTS WITH EPILEPSY & THEIR CAREGIVERS

2nd Tuesday of every month – 6:30 pm
Wallkill Medical Arts Building
390 Crystal Run Road – Suite 102
Middletown, NY

3rd Monday of every month - 6:00 pm
737 Castleton Ave
Staten Island, NY 10310
(two blocks from Richmond University Medical Center)

1st Thursday of every month - 6:30 pm
White Plains Hospital Medical Library
Davis Avenue & East Post Road
White Plains, NY 10601

3rd Thursday of every month - 6:30 pm
Hackensack University Medical Center
20 Prospect Avenue - Suite 800
Main Conference Room
Hackensack, NJ 07601

1st Tuesday of every month - 6:00 pm
Jersey City Medical Center
355 Grand Street
Conference Room #5
Jersey City, NJ 07302

1st Wednesday of every month -
6:00 pm

Manhattan
820 Second Avenue, Suite 6C
(between 44 and 43rd Streets)

GRUPOS DE APOYO EN ESPAÑOL

2do jueves de cada mes - 6:30 pm
Salon de Conferencia
20 Prospect Ave.
Suite 800
Hackensack, NJ 07601

2do miércoles de cada mes - 6:00 pm
Manhattan
820 Second Avenue, Suite 6C
(between 44 and 43rd Streets)

CONTACT INFORMATION
Lorna Myers, Ph.D.
212-661-7460, option 5
lmyers@epilepsygroup.com

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Stay Tuned - Mark your calendars
Stay Tuned - Mark your calendars

1) March 26, 2012: Purple Day
Purple Day began in 2008 and is now the world’s largest epilepsy event, with over 100 countries taking part. Founded by nine-year-old Canadian Cassidy Megan to raise awareness and shine a light on epilepsy. 

2) March 31, 2012: National Epilepsy Walk in Washington, DC
The Northeast  Regional Epilepsy Group will be participating in the National Walk for Epilepsy scheduled to take place on the National Mall in Washington, DC

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 iso epilepsy group www.epilepsygroup.com iso epilepsy life links www.epilepsylifelinks.com Follow Us on Facebook

Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of seventeen board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.

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bullets 20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
bullets 333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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