Epilepsy on the Move: Stay tuned for upcoming epilepsy and seizure disorder events and news in the first quarter of 2023! The highlight of this time of the year is Purple Day for epilepsy
Stay tuned: There are plenty of upcoming activities that you may want to jot down and keep in mind over the next few months. NEREG will be hosting a virtual conference on psychogenic non-epileptic seizures (PNES) in April. Book club members voted on the book for the next book club meeting that will be held in May 2023. The next chosen book is "A smell of burning: a memoire of epilepsy" by Colin Grant. Also, our virtual support group for adults living with epilepsy (and their loved ones including spouses, parents, and other family members) will run through June of 2023 and then take a break for the summer months of July and August. And last but not least, PURPLE Day, a day to celebrate and raise awareness for epilepsy is just around the corner on March 26 which is when Epilepsy Services of NJ will be hosting the PAINT THE PONY PURPLE at the Stone Pony in New Jersey.
March 26, 2023
The Epilepsy Services of New Jersey (ESNJ) will be hosting the Paint the Pony Purple ESNJ at The Stone Pony 913 Ocean Ave N, Asbury Park, NJ 07712.
Join the ESNJ and all their members in this fun musical event that raises epilepsy awareness and much needed funds.
March 26, 2023
Purple Day is an international grassroots effort dedicated to increasing awareness about epilepsy worldwide. On March 26th annually, people in countries around the world are invited to wear purple and host events in support of epilepsy awareness. Last year, people in more than 85 countries on all continents participated in Purple Day! To find out all the creative ways to recognize this important day, visit: https://purpledayeveryday.org/anita-kaufmann-foundation/
April 29, 2023
NEREG will be hosting a virtual conference on treatments for psychogenic non-epileptic seizures (PNES). Speakers include Drs. Lorna Myers, Gaston Baslet and Julia Doss. Cost: free. To read more about the program and to register: https://epilepsygroup.com/news_patients_providers6-20-2-349/virtual-conference-for-patients-loved-ones-and-their-cl.htm
April 30, 2023
April 30 is the deadline to apply for the Dr. Lorna Myers scholarship for individuals diagnosed with psychogenic non-epileptic seizures (PNES) and who are pursuing an education (college or trade school). The scholarship is supported through the donation of all royalties from the book “Psychogenic non-epileptic seizures: A Guide.” To apply: https://www.epilepsyallianceamerica.org/programs-services/scholarships/lorna-myers-pnes-scholarship-fund/
May 12, 2023
On May 12, at 12 noon (EST) our Epilepsy Book Club will meet online to go over the new book that was selected: “A smell of burning” by Colin Grant. All our newsletter readers are welcome to join in. Email lmyers@epilepsygroup.com to join.
This is a brief synopsis of the book for those of you who are interested in participating in the book club or just interested in reading along with the group. One day Colin Grant’s teenage brother Christopher failed to emerge from the bathroom. His family broke down the door to find him unconscious on the floor. None of their lives were ever the same again. Christopher was diagnosed with epilepsy. In A Smell of Burning Colin Grant tells the remarkable story of this strange and misunderstood disorder. He shows us the famous people with epilepsy like Julius Caesar, Joan of Arc and Vincent van Gogh, the pioneering doctors whose extraordinary breakthroughs finally helped gain an understanding of how the brain works, and, through the tragic tale of his brother, he considers the effect of epilepsy on his own life.
